Welcome Twitchwitch,

You will find good support here and plenty of understanding. It is frustrating when something is wrong and you can't get a clear answer. I would encourage you to explore any repetitive motion, activities, exercises, computer use, bedding, etc. That might contribute. I had horrible neck and shoulder pain with some numbness about 8 years ago, a little compression at c5/6 but nothing doctors found alarming. For me altering my activities ( no more half mile swim, weights overhead, hedge trimming, etc) made a massive difference in the pain and aggravation. It is really no longer a problem except on the occasion that I sleep on it weirdly or do something I shouldn't like put luggage in the overhead bin! Sometimes the constant irritation of a small amount of compression can really cause a problem. Perhaps you may find there is something you have the power to easily change that will help.

I hope you find relief soon,
Sending Healing Love, Littlepaw