[sarah1942]

Hi my name is Sarah, about five years ago I felt like I was walking on lumps and went for nerve tests in hospital where peripheral neuropathy was diagnosed. I couldn't feel the correct temperature in my feet until getting to the bottom of my calves, then it was ok. I was told the tight, numb feeling would most like be from pressure on the spinal cord. THERE WAS NO FOLLOW UP.

Over the past year the pain in my upper feet and toes is getting unbearable. My groin and right thigh pain is getting worse, the tight feeling feels like my feet and ankles are tightly bandaged and the stabbing pain on the top of my right foot behind the toes is so bad I cant kneel down. I get bad calf cramps if I try to point my toes and in reality my feet no longer feel like they belong to me-- in fact I'm so scared as my symptoms are escalating rapidly now. I eat very healthily and I'm not overweight.

I'm waiting for an MRI on my spine but no news yet.

What can I expect now? I don't know a single person with this disease, is there anyone on here who can advise please?

[Lara]

Hello Sarah,
Welcome to the NeuroTalk Support Groups.

I would suggest you post on the PN forum. I'm posting that link below as well as the sub-forum. I'm sorry you've been diagnosed with Peripheral Neuropathy and are in such bad pain.

I'm sure you'll find a wealth of information posted there as well as support from the other members.

Here is the link to the
Peripheral Neuropathy Forum

and also

PN Tips, Resources, Supplements & Other Treatments Sub-Forum

take care.

[PhilfromOz]

Hi Sarah, I started with similar symptoms about 3 months ago. In the last week I have started getting piecing pain in my groin. I was diagnosed with PN also. You need to have a full blood test to cover all the possible causes of your neuropathy. The wonderful people on here will tell you what needs to be checked for. There are numerous medications and treatments that can ease things, again everyone here will help. Please take care and try not to stress too much.
Phil

[DejaVu]

Hi Sarah,

Welcome to NeuroTalk.

I think you will find some very helpful support and information here.
We all share feelings, experiences and information, in hopes of lending support to one another.

You are not alone.
There are many people here also experiencing similar symptoms. I am one of them. Lara has suggested the PN forum and I also feel it's a good place for you to start. Please try to not get overwhelmed or more frightened by information/reported experiences. Everyone is a bit different. There are different types of Peripheral Neuropathies, etc. We will all try to help you with emotional support and with information.

Also, please take a look around other forums here. Some of them are fun, where we share music, wildlife pictures, jokes and other common interests.
There are many truly wonderful people here!

Come on in and make yourself at home!
To Our Healing,
DejaVu

[Bryanna]

Hi Sarah,

I'm sorry to hear you are suffering so and not getting much help or relief from your doctors. Have you had any extensive blood, urine and/or stool testing to check for infection, nutrient/vitamin deficiencies, parasites, intestinal permeability (leaking gut), food allergies, or hormone imbalances?

Eating healthy means different things to different people. I often find when working with clients that they are under the assumption that eating healthy means avoidance of fast or processed foods, soda and sugar. Of course it is those things but it is also an avoidance of chemical laden foods that have been genetically modified because our bodies are not designed to consume and metabolize pesticides and chemical modifications without causing some major disruptions in our bodily systems.

Anyone can acquire allergies or sensitivities to food and/or have deficiencies and imbalances in their digestive, endocrine and detoxifying systems. Even those who truly eat very healthy! Sometimes the only signs of these problems are physical pain that mimics different types of neuropathy.

Very frequently people have to seek Integrative medical care either from a Naturopathic or a Functional Medicine Dr or Nutritionist to help uncover the root cause of their physical pain because conventional medicine does not delve into nutrition or preventative health care. Unfortunately, the education that physicians receive is based around symptom relief, pharmacology and surgery. Unless the individual goes beyond the conventional teachings, there is no education about nutrition, prevention or getting to the root cause of the problem.

Here are a couple of articles that go into vitamin deficiencies and PN. I hope you find them helpful!

http://www.ninds.nih.gov/disorders/p...neuropathy.htm

http://www.hormonesmatter.com/proges...al-neuropathy/

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199287/

http://peripheralneuropathycenter.uc...utrition.shtml

Bryanna

Originally Posted by sarah1942

Hi my name is Sarah, about five years ago I felt like I was walking on lumps and went for nerve tests in hospital where peripheral neuropathy was diagnosed. I couldn't feel the correct temperature in my feet until getting to the bottom of my calves, then it was ok. I was told the tight, numb feeling would most like be from pressure on the spinal cord. THERE WAS NO FOLLOW UP.

Over the past year the pain in my upper feet and toes is getting unbearable. My groin and right thigh pain is getting worse, the tight feeling feels like my feet and ankles are tightly bandaged and the stabbing pain on the top of my right foot behind the toes is so bad I cant kneel down. I get bad calf cramps if I try to point my toes and in reality my feet no longer feel like they belong to me-- in fact I'm so scared as my symptoms are escalating rapidly now. I eat very healthily and I'm not overweight.

I'm waiting for an MRI on my spine but no news yet.

What can I expect now? I don't know a single person with this disease, is there anyone on here who can advise please?