Newly Joined
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Join Date: Oct 2015
Posts: 1
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Newly Joined
Join Date: Oct 2015
Posts: 1
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Hi I'm new and I was diagnosed with a rare disease.
Hey, my name is Brittni. I'm eighteen and I was diagnosed with something called Stiff Persons Syndrome last Janurary. Another name for it is Stiff Man's disease.Most people get it in their forties I guess. What makes me even more rare is how young I am and the fact that I have a variant of it. Most people get it in their forties I guess.
I've been getting IVIG transfusions for the last nine months and am waiting anyday now to be admitted for my tenth treatment. I guess I'm just looking for people who can understand how draining this is for me. No one in my family seems to...
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