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06-30-2007, 07:34 AM
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Hello... I joined up so I can get more information (and maybe give some eventually). I have been having profound weekness in my arms and legs - much more so in my arms. My right shoulder froze up and now my left one is starting but I never injured either one. I asked my neuro for an EMG and he got me one and it was abnormal - just like the ones that are for MG, ALS etc. I have had eye issues but they go back so long that I am not sure that they are related and it was always thought to be related to the Cushing's (which took over 12 years to get diagnosed as no one took my pituitary issues seriously and my body is in terrible shape as it is). ALS has been detected in two family members - one who has passed and one who is currently suffering so that is making me worried too.
Right now they are thinking Myathenia Gravis but so far none of the bloodwork has come back positive and no one else seems to be in pain or have a rash. I am still in the early stages and go for a chest mri in the next few weeks. Thanks for listening. Jennifer
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Cyclical Pituitary Cushing's, Addison's via bilateral adrenalectomy, Growth Hormone Deficent, Migraines, Trigeminal Neuralgia, Hashimoto's, Hypothyroid, Myasthenia Gravis? |
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06-30-2007, 09:01 AM
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Welcome to NT, Rumpled! I love your screen name  I'm sorry to hear you are having all these health issues, but glad you found us! You'll find this forum to be full of caring, compassionate folks as well as being a font of knowledge.
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There are only two types of people in this world... those who bring you peace and those who don't. |
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06-30-2007, 09:45 AM
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Elder
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HI Rumpled
  to our little corner of the world!!!Here are some links that may help you find some answers...the people there will definitely offer lots of support!!! Myasthenia Gravis forum: http://neurotalk.psychcentral.com/forumdisplay.php?f=77 ALS forum http://neurotalk.psychcentral.com/forumdisplay.php?f=6 We also have a lot of fun in the social chat area... please join us there if you'd like!! Social Chat http://neurotalk.psychcentral.com/forumdisplay.php?f=35 You will find some of the nicest people here as NeuroTalk!! Feel free to jump in the conversations on any forum!!! Share what you want, ask questions when you need, or just join in the fun!!!  Abbie |
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06-30-2007, 09:46 AM
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Young Senior Elder Member
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Welcome Rumpled...those two said it all! *grin
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06-30-2007, 11:24 AM
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Wise Elder
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Hiya, Rumpled!
Great name, I could be "Rumpled II"!Looks like our friendly band of nelpers have offered you some great suggestions. If you need anything, just let us know! Welcome to NeuroTalk! 
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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06-30-2007, 04:14 PM
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Grand Magnate
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Hi (((Rumpled))). So glad you found us! The folks at this forum are wonderful.
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. . . . . . Bruna - rescued from a Missouri puppy mill |
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