[cheyne]

Hello all! This NeuroTalk forum looks inviting, so I decided to join. I have had CRPS for 10 months now, and it is spreading and is more painful. I am thankful that it arrived near the end of my life, instead of earlier. My heart goes out to all who are younger and experiencing chronic pain!

[Lara]

Hello Cheyne,

Welcome to the NeuroTalk Support Groups.

I'm sorry that you've been diagnosed with such a painful condition. Please check out the

Reflex Sympathetic Dystrophy (RSD and CRPS) Forum

There is a wealth of information in the "Sticky" threads at the top of the main page of that forum too.

take care.

[EnglishDave]

Hey Cheyne,

At any age, chronic, painful conditions suck! So sorry you are dealing with CRPS now.

However, Lara has pointed you in the direction of our CRPS Forum, which is full of wonderfully welcoming and knowledgeable Members. You should be able to glean all the information and support you need there.

Hope you find some relief and resolution,

Dave.

[cheyne]

Thanks for your messages! I'll check out that forum.

[Littlepaw]

Hello Cheyne,

I am so sorry you are having to join us but it is a soft place to land with wonderful support. I am on the CRPS forum and we do indeed have many welcoming members. The best way for them to find you is for you to start a new thread there with a brief hello like you gave here.

CRPS is a frightening diagnosis to receive but please hold on to hope. According to Dr. Michael Stanton-Hicks of Cleveland Clinic (a CRPS bigwig), 80% of patients improve over time. Treatment of CRPS and any identifiable pain contributors can help. Get the best medical care you can with someone who is experienced in treating this disease. Keep utilizing the limb through gentle exercise and whatever you can do that doesn't cause flare. If you are not currently having your pain managed, do so. Pain gets more pain and increases the likelihood that you will be stuck with changes in how your body perceives it.

Many of us have found the following video helpful. It is by a prominent and compassionate CRPS specialist, Dr. PRadeep Chopra, who is non-doomsday and gives many practical tips on treaments.
http://www.youtube.com/watch?v=s3LKhOZ8mAM

Come see us and let us know how you are doing. The forum is great for getting feedback on treatments, meds, for sharing and support. You are not alone.

I hope you find relief soon!
Sending hugs and healing love,

[Darlene]

Hello and welcome, happy to see you have come to be with us, it a great place to be. We have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene