[aManHasSaid]

Hello--

I've spent much of the past three years chasing down signs and symptoms, and working with numerous clinicians to find a good fit--one who has some experience with inborn errors of cobalamin (B12) metabolism.

I found a surprising number open to learning that B12 cellular malabsorption is not your grandfather's anemia. Further, am finally getting hooked up with medical geneticists who know how to better address this underdiagnosed pathology of cellular metabolism gone off the tracks.

I am also here to glean what I can in support of my CFS daughter (8 years bedridden) to ease her burden.

Good to be among you.

--aManHasSaid

[Lara]

Hello and welcome to the NeuroTalk Support Groups.

I'm very sorry to read that your daughter has been ill for so long.

I just wanted to leave the links to a few of the forums here that may be of help to you both. I'm sure you'll find great support and information.


Fibromyalgia and Chronic Fatigue Forum

STICKY - The Vitamin B12 Thread

Vitamins, Nutrients, Herbs and Supplements Forum

[Darlene]

Hello and welcome, happy to see you have come to be with us, it a great place to be. We have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene