[gizzmo2010]

i'm 28 i have epilesy, non-epiletic fits, hyper to hypomobiltly(now have to use cruths to walk long distances), depression, anxiety, dislexia(what a word for people with reading and writing problems), sleep apnoea, tinatus and now to top it off i'm photophotobic and devloping migraines.

i like computer games, programming and the outdoors. and would like to meet some with photophobia that can help me learn about it and ways to carm it down

[Lara]

Hi gizzmo,

Welcome to the NeuroTalk Support Groups.

There are a number of forums here that match some of the issues you are dealing with so I'll post a few links down below. Just click on the links and that will take you to the relevant forum.

Epilepsy Forum

Sleep Apnea & Sleep Disorders Forum

Depression Forum

Anxiety Forum

Headaches (includes migraines)

You'll probably find posts regarding photo phobia on the epilepsy and headache/migraine forum, but you can always use the forum search feature to find specific words if you want too.

Forum Search Feature

If you ever need to switch off images due to your condition you can do that in your User Control Panel and go to Edit Options and then Visible Post Elements.

Hope that helps.

[Porkette]

Hi gizzmo,

Welcome to the forum! I've had epilepsy for 44 yrs. and it started out with migraine headaches which led to seizures. I will tell you that sleep apnea can trigger seizures because lack of sleep and stress are the 2 main things that can cause seizures for many people. You need to see a neurologist or better yet a Epileptologist which is a Dr. specializing in epilepsy. I found out a couple of yrs. ago after having a sleep study done that I was having seizures in my sleep. Also anxiety can get a person worked up which in turn can cause more excitement which can lead to a seizure.
Try taking vitamin B12 1000 mcg. once a day, cut back on foods that have carbs and starch in them and start eating high fat foods. This is known as the ketogenic diet and is for people who have epilepsy. The diet builds up keytones in a persons body which in turn reduces and sometimes stops seizures.
Depression comes along with epilepsy because of all the meds and activity going on in the brain. Start keeping track of your seizures, get a calendar and write down what time you had the seizure along with the type of seizure you had by doing this the Dr. can often see a pattern in a persons seizures as to what days of the month a person will have any seizures and what time of the day. I wish you the best of luck and May God Bless You!

Sue

[Darlene]

Hello and welcome, happy to see you have come to be with us, it a great place to be. We have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[gizzmo2010]

Hi sue
thanks for the welcome to the forum, my seizures started when i was 3 so i think that just i got used to then, my sleep apnea was diagnosed with out the sleep study, i knew it was making me sezures and sleep worst but my doctor wants me to see nerologist first get my sezures under control but the lamotrige has buggered my sleep pattern i was getting 8 hours a night, but now im having 4-5 hours a night, i'll have a word with my doc when i see him next about doing sleep study and i'll have a look at the ketogenic diet too

anyway sorry i have to go i have a MRI in a few hours and have to walk the dog first before it gets to bright outside

[Porkette]

Hi gizmo,
I wish you the best of luck with the MRI and I hope they can find the best sz. med for you. It took me over 40 yrs. to find out I was drug resistant to all sz. meds so now my Dr. wants me to try the medical marijuana.
Wishing you only the best of luck and May God Bless You!

Sue