Hi my name is Joanna, I am 38 years old. Almost 9 years ago I had a craniotomy performed for a tumor that had bled and I had an avm at same site (cerebellum/brain stem area). I did fine for first three years after surgery. It has been after that time I started experiencing headaches and times of confusion, disorientation, vision problems, slurred speech. I have had nerve blocks done, when that didnt work I had my greater occipital nerve on left side of head removed. I have been on numerous antidepressants, anti-seizure medications, high blood pressure medicines. right now I am feeling lost and unsure of what to do with myself. I live in pain and then I have these what I call spells of the other symptoms. It is getting harder to hold down my job and raise my 9 yer old son. If anyone is going through these same symptoms please let me know. I feel like I am going crazy.

Hi Joanna,

Welcome to the NeuroTalk Support Groups.
You've certainly had a lot of very serious health issues in the past ten years. I'm also sorry that you're in so much pain.

If you want to search for other posts where people have been dealing with similar heath problems, you could try the

Forum Search Feature

[btw, Searching for something such as AVM will not work though because it needs to be more than 4 letters. You could try Arteriovenous Malformation.]

There is also the Chronic Pain forum

take care there.

Hello and welcome, happy to see you have come to be with us, it a great place to be. We have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene