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| New Member Introductions Welcome to our community! Come in and introduce yourself to other members!! |
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12-03-2016, 09:08 PM
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Newly Joined
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Hi everyone.
This is my first experiences with support groups. Earlier this year I received a confirmed diagnosis of atypical NBIA. A couple of months ago I was notified that my DNA revealed I do not have NBIA. It is a neuro degenerative disease but they are not sure which one. Having been in the hospital and undergone extensive testing I have decided to step off the merry go round at least for now - no more testing. I am wondering if anyone else is in a similar circumstance with diagnosed neuro degeneration. |
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