Home Menu

Site Navigation



New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!

NeuroTalk Support Groups > > >

New Member

Reply
 
Thread Tools Display Modes
Old 12-03-2016, 09:08 PM #1
Lonepine Lonepine is offline
Newly Joined
  
Join Date: Dec 2016
Location: Gananoque, Ontario
Posts: 1
8 yr Member
Lonepine Lonepine is offline
Newly Joined
 
Join Date: Dec 2016
Location: Gananoque, Ontario
Posts: 1
8 yr Member
Default New Member
Hi everyone.

This is my first experiences with support groups.
Earlier this year I received a confirmed diagnosis of atypical NBIA.
A couple of months ago I was notified that my DNA revealed I do not have NBIA. It is a neuro degenerative disease but they are not sure which one.
Having been in the hospital and undergone extensive testing I have decided to step off the merry go round at least for now - no more testing.
I am wondering if anyone else is in a similar circumstance with diagnosed neuro degeneration.
Lonepine is offline   Reply With QuoteReply With Quote
Old 12-04-2016, 04:03 PM #2
Skeezyks Skeezyks is offline
Member
  
Join Date: Jul 2016
Location: The Twin Cities
Posts: 281
8 yr Member
Skeezyks Skeezyks is offline
Member
 
Join Date: Jul 2016
Location: The Twin Cities
Posts: 281
8 yr Member
Smile
Hello Lonepine: Welcome to NeuroTalk! I hope you find the time you spend here to be of benefit.

I'm sorry I cannot comment with regard to your condition. You might want to consider re-posting this in one of the other forums here on NT. I'm not sure which one would be the most applicable. You can look through the list of forums & see what you think. One option might be the General Health Conditions and Rare Disorders forum:

http://www.neurotalk.org/forum2/

Perhaps other members, here on NT, may have other suggestions.
Skeezyks is offline   Reply With QuoteReply With Quote
Reply

Tags
decided, nbia, neuro, similar, testing

« Previous Thread | Next Thread »
Thread Tools
Display Modes
Linear Mode Linear Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
New member ORRN Myasthenia Gravis 3 08-01-2010 06:54 PM
new member calligirl Multiple Sclerosis 14 04-01-2010 01:09 AM
New member and I need help Cindy RDH New Member Introductions 6 03-17-2010 01:01 PM
New Member Chemar Survivors of Suicide 4 03-11-2010 02:36 PM
(Old) New member calrec New Member Introductions 2 02-24-2010 08:58 PM


All times are GMT -5. The time now is 03:52 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home