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Old 12-03-2016, 09:08 PM #1
Lonepine Lonepine is offline
Newly Joined
  
Join Date: Dec 2016
Location: Gananoque, Ontario
Posts: 1
8 yr Member
Lonepine Lonepine is offline
Newly Joined
 
Join Date: Dec 2016
Location: Gananoque, Ontario
Posts: 1
8 yr Member
Default New Member
Hi everyone.

This is my first experiences with support groups.
Earlier this year I received a confirmed diagnosis of atypical NBIA.
A couple of months ago I was notified that my DNA revealed I do not have NBIA. It is a neuro degenerative disease but they are not sure which one.
Having been in the hospital and undergone extensive testing I have decided to step off the merry go round at least for now - no more testing.
I am wondering if anyone else is in a similar circumstance with diagnosed neuro degeneration.
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