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Old 08-03-2007, 03:17 PM #1
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Hello to everyone,

I'm new to this site and I'm so glad I found it. I have CIPN my symtoms started aobut 8 years ago. I had a sural biopsy in November 2006 from that I was misdianoised in December of 2006 and put on Predisone ( my version of Hell) which gave me Myopathy. I was taken off the predisone that took 4 months. My 3 doctors in PA said it was a vasculitis, I went to the Cleveland Clinic in March and they totaly disagreed and said it was CIPN. I have been on Lyrica since last July, I new I would gain weight from the predisone but I didn't realize that Lyrica would do the same thing.

I'm so glad to have found this site, its hard to explain to anyone with out this disease just how it feels. I haven't worked since last July and I'm on SSI I'm also see a therapist since I've had a hard time giving up my career. I'm unable to drive longe distant since I have no feeling in my feet.

But I'm happy to be feeling better and glad to be here.

Kathy
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Old 08-03-2007, 04:28 PM #2
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Welcome to NeuroTalk Kathy. I don't know where to direct you because I am not familiar with CIPN but someone will come along with the link.

this is a great place to find support.
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Old 08-03-2007, 07:41 PM #3
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Hi Kathy!!! Welcome to the community. We are so pleased to have you here!!
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Old 08-04-2007, 12:06 AM #4
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Kathy,

Hello and welcome to NeuroTalk. You will find a good number of people here to assist as they can. Looking forward to seeing you around.

Darlene
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Old 08-04-2007, 01:36 AM #5
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Welcome.. I have PN too. I am sure you will find a lot of support here.
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Old 08-04-2007, 08:22 AM #6
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Hi, Kathy! Welcome to NeuroTalk!

I'm glad you found us. You'll find this place filled with a supportive and informative bunch of good folks. Let us know if we can help you with anything.
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Old 08-05-2007, 08:55 AM #7
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Hi

I'm from PA too.. and have PN..

I'm a newbie and I'll introduce myself in a sec..but wanted to say hi and
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Old 08-05-2007, 05:12 PM #8
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Hi and welcome to neurotalk.

Donna
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Old 08-06-2007, 08:42 AM #9
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Hi Kathy and Welcome to NT. Glad to see that you are feeling better.
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Old 08-06-2007, 05:14 PM #10
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Hi Kathy and welcome to NeuroTalk. This place is great.

Here is a link to our PN forum. http://neurotalk.psychcentral.com/forumdisplay.php?f=20

You'll find that everyone here is just wonderful.
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