I have been looking for online groups just to get and give support in the neuro world.


I have spent the past year trying to get a diagnosis for my major extremity motor loss. I am now at the point where walking, standing, bathing, etc. are all limited. My current neurologist is thankfully receptive and helpful. But after labs, conduction studies, lumbar punctures, still no hits. Silver lining, we know a lot of what it’s not!

I’m not looking for a diagnosis (unless someone has one!), but just folks to connect with.

I hope everyone has a great night/day!