My name is Barbara and I live in Anchorage, Alaska with my husband Don.
He is 80 years old and has Parkinson. Iam his primary caregiver. Looking for any and all information, ideas, hints or anything else that someone may have. Don is also getting dementia.
We are very far from the big medical canters and the are not too many people in Alaska who have PD, we belong to a small but very great group of PWP. Many time we get more information from them then we do from Dons doctors. Sometimes it seems his Neurologist just wants to hear himself talk and doesnt seem to hear us.
We are taking "IT" one day at a time and staying up-beat.
Thanks for listening.
Barb

Hi, Barb,



Welcome to NeuroTalk.

We've got a couple of groups that I believe you'll find helpful:

Parkinson's Disease

and

Caregivers Support

We've got a unique combination of people here. Most people don't stay in their "home" forums -- they wander around and help wherever they can. Friendly. Helpful. Caring. Loving. You're gonna like it here, even though the reason that brought you here isn't so great

BIG HUGS. And welcome.

Barb

Hi Barb,

(((((((((Barb)))))))))

A year or so ago I sold my rental and before I knew that my condo had been foreclosed and sold without me knowing, I felt secure...

so I sent two friends of mine who have Parkinson's Methylcobalamin... I forget ... but I think I sent about enough for them to have 8 of the 5mg ones a day...

I sent that amount because when I had really a lot of b12 replacement therapy it had done remarkable things for me: almost entirely ridding me of my peripheral neuropathy.

Well, I only did that for a couple months... for one thing, the one friend said it was stressful taking so much... because there was the "expectation" it was going to help with the Parkinson's when that was highly unlikely...

Okay, so this is the important part: he said it did help with his thinking... it made it clearer.


For myself, before I began having B12 replacement, ten years ago, I couldn't go to the grocery, the copy shop and the post office because it was just too much to remember and I'd get so confused and that was so stressful.

But then after I had several months of replacement therapy my thinking became a lot clearer...

I have a lot of excerpts from research on my site...

I wish I could send you some Methylcobalamin... but right now is a time with more pressure than money for me...


((((((((Barb)))))))))

Barb,

Hello and welcome to NeuroTalk. I see Moose has given you some links. There are a great many of links here to help anyone out. Also there a good number of member here to assist in any way they can. Looking forward to seeing you around.

Darlene

Hi, Barb, I'm sorry to learn of your predicament.

Does your hub's neuro have a brother in my town? I think he might be the neuro I fired. Those big talkers can sometimes make everything seem worse!

I see that you have been given some good starting points, so I'll add my warm welcome and hope that you will find this to be a supportive and useful community.

Welcome to our Community, Barb!

HI Barb and welcome. You'll find tremendous compassion and support here.