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new Tarlov Cyst diagnosis

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Old 08-22-2007, 04:24 PM #1
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Confused new Tarlov Cyst diagnosis
hi there...i am new to this forum and am looking for others that have this diagnosis that have been having problems finding help...i only recently was diagnosed and have had severe back problems for many years...i saw a neurosurgeon earlier this week who told me that these cysts do not cause pain...of course he could not tell me what was causing my severe arm pain despite the fact that there are new cysts (they were not there last year at this time) and no explanation for my arm pain...the cysts are cervical with one in the lumbar area which he refused to even discuss with me...so if you have any names of mds that are open to this diagnosis being painful i would appreciate the info...thanks and take care all...lisa
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Old 08-22-2007, 06:33 PM #2
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Welcome Lisa

I'm afraid I have no ideas for you, but wanted to welcome you.

Hopefully soon someone can come get you to the right forum.

And you can locate some help>
D
onna
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Old 08-22-2007, 06:37 PM #3
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WELCOME TO nEUROTALK, nANArOSE!!!
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Old 08-22-2007, 07:03 PM #4
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hello nanarose

here is a link to our Tarlov Cyst forum.

http://neurotalk.psychcentral.com/forumdisplay.php?f=73

i copied your post tothat forum. here is alink so you can check for replies.

http://neurotalk.psychcentral.com/sh...ad.php?t=26516
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Old 08-22-2007, 08:46 PM #5
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Hi Nanarose,

Welcome to NT.

I have Tarlov cysts too and am new on the journey for treatment (since Mar 07). I don't really get the arm pain but I do lose some use of my arms when I have an active episode. My pain is located along the ribs......it is very painful!!!! Never know when it's going to start again and either side can be affected.

You will find a lot of help here.

Kiza
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Old 08-23-2007, 08:12 AM #6
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Hi, Nanarose!

Welcome to NeuroTalk! You may also benefit from browsing our spinal disorders forum here: http://neurotalk.psychcentral.com/forumdisplay.php?f=22

I hope you'll find the support and information you need here. Do let us know if we can help you in any way.
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Old 08-23-2007, 03:22 PM #7
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Lisa, Hello and welcome to NeuroTalk. There are a great number of members here to assist as they can. Looking forward to seeing you around.

Darlene
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Old 09-07-2007, 09:07 AM #8
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Wink Hang in there
Hello Lisa welcome I'm new to this too. I'm so sorry that you are going threw this. Like so many of us the Drs don't listen to us or ignore our our feelings. just hang in there. Hope and Faith can do alot for you when you feel like there is no end insight. Kdee
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Old 03-07-2009, 04:39 PM #9
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Default Hi there Lisa
I know exactly what you are going though,don't let any doctor tell they don't cause pain,they do.I now have permanent S1 nerve damage and disabled from having a Tarlov cyst.So this doctor can help you,Dr. Frank Feigenbaum in Kansas City,Kansas.Don't wait around.Once the cyst gets too large this can happen.I had so many doctors tell it was not what I had,well it was.
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Old 03-07-2009, 09:51 PM #10
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Hi nanarose, and welcome to NeuroTalk! This is a great place to hang out with lots of friendly and helpful people.
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