I have had a few days stay in the hospital and lots of tests run with very little information coming back to me about what the results have been.

The next test that Neurologist wants to run is the 24 EEG. I'm pretty nervous about it. The 1/2 hour EEG in patient lasted over an hour and I had a lot of seizure activity. They said they did not see evidence of such seizures in my brain. I felt really stupid about this news. So I'm having a jerking party and I'm the only one that is invited? So it's being labled a psuedo seizure. Apparently not in my control, but not in my brain in an organic way. So again I feel like a dufus!! I'm very afraid that if I have any more seizure type acitivity I'll be told again.... you are just having pseudo seizures. Personally, I feel pretty guilty about that being true. Doesn't it basically mean I'm having a treat causing lots of medical attention when in fact there is nothing really wrong with me? I'm confused!
I have had alfactory hallucinations, visual and auditory but only just before the seizure. Otherwise, not.
I'm taking the dilantin, but GOOD LORD!! What an imbecille I am on this drug.
Well, that's enough ranting about my affiliction/prediction. Any thoughts?

Welcome to the Community!

Yours,

DC

Marsha

I have more than one thought.

You could easily have both seizures as you called them in the brain and pseudoseizures. Its not uncommon.

Its very much possible that the seizures are very deep in your brain too.

I also want you to know that pseudoseizures is a bad name for what they are saying you have. It just means you are having seizures that aren't on a EEG,
your seizures are things you can't help.

You have seizures that are happening, they can't be controlled by you. You need medication or sometimes therapy can help them. But the kind you are describing sound like they could use a medication.

I would be very surprised honestly if dilantin is going to stop what you have going on. Do you also see a psychiatrist that understand seizures. If not you need to get one that does. This would be a very good move. He/She could help make the move to the right anti-seizure medication for you that would help with the other issues too.

Some of the medications are very good for the other things you describe, but only a combination type doctor is going to know what might work the best for you.

Please if you need to talk to someone that totally understands, I really do.

My son who is now 16, has had seizures for 8+ years, but the thing that is even more important is that he has suffered from hallucinations and some other things too.

Donna

Marsha,

Hello and welcome to NeuroTalk. You will find a great number of people here to share comfort and assistance. Looking forward to seeing you around.

Darlene

Hi, Marsha!

Welcome to NeuroTalk!

Boy, I sure hope you can get some answers soon and get this under control. Let us know if we can help you navigate the boards.