Hello, this is my first time posting anyting on a forum, I hope that I am doing this right.

My daughter is a miracle in every sense of the word!!! She was born at 30 weeks, suffered from collapsed lungs, bilateral chest tubes, hydrpcephalus and eventually had a VP shunt inserted...Is there anyone else that is dealing with a child in a similar situation on this site?? She is 6 1/2 months old now (4 months corrected age) and eating well and very bright, on the petite side and my main concern is her development she had a lot of pressure to the parts of the brain that control her arms and specifically her legs...she has a great team of O/T, P/T S/T and pead. neoro doc following her but all this "let's just wait and see or time will tell us more" is litterally giving me nightmares!!! Of course I know some day she will need to have a new shunt put in and that keeps me awake as well...how long will it be??

Anyways that is enough ranting for now...I realize everyone has their own issues to keep them up at night, thanks for the ear!!

PS Our little Angel really is a gem!!!

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

You might want to check out this link if you havn't, there should be a great number there to assist and answer your question. Please given your gem a great big for me.

http://neurotalk.psychcentral.com/forum14.html

Again welcome, looking forward to seeing you around.

Darlene

Hi, Parent! Welcome to NeuroTalk!

You sound like a pretty good mom, you'll find lots of good company here. Please feel free to join in anywhere.

Hi there,
WELCOME TO NEUROTALK, you will find many caring and supportive people here. I am so sorry about everything that you and your daughters been through ((hugs)), she sure is a little miricle!
If you need anything just ask
Thanx
Alison

WELCOME TO THE GANG PARENT!
WHAT A ROUGH TIME FOR YOU & YOUR DAUGHTER! I SURELY HOPE YOU GET SOME ANSWERS SOON & AREN'T FORCED TO AGONIZE OVER THINGS. DEMAND THAT YOUR DOC BE MORE HANDS-ON AND INFORMATIVE AS WELL. THEY SURE WOULDN'T WANNA HAFTA BE IN YOUR SHOES. NO ONE SHOULD BE DEPRIVED OF INFORMATION!
I WISH YOU THE VERY BEST! YOUR LITTLE ANGEL SOUNDS LIKE A REAL FIGHTER & I PRAY THINGS WILL KEEP GETTING BETTER & BETTER! REMEMBER THAT GOD MADE US & HE CAN HEAL US...WE JUST NEED TO TURN TO HIM. I COULDN'T MAKE IT THRU A SINGLE DAY WITHOUT HIS HELP & HE'S PULLED ME THRU MANY CRISES!
KEEPING YOU IN MY PRAYERS
HUGS
CRITTER
=^..^=