In August, I had a mascetamony and was put on Tamoxifin. I still have swelling where my lymphnoids were taken out, and I was also told that one of my nerves had to be cut and two others were stretched out of the way. I have experienced a strange nerve sensation, which my friends don't understand when I try to explain it. When I get cold, or chilled, instead of getting goosebumps and raised hair on my arms, or shivering (things that happened all the time before the surgury), I get a rush of nerve sensations inside my system. It started with the feeling in my upper legs, then upper legs and around my hip area, then upper legs, around my hip area and around the small of my back.

I have talked to two doctors, neither of them really knowing what this might be.

I have also been suffering menopouse. When I have an episode, I can feel it coming on because there is a tingling or numbness occurring in the front of my brain.

Any ideas or things to research would be helpful

Thank you

Mindy

Not real sure what's up; I posted but I don't see it anywhere and the system continues to ask me to go to the new member introduction. That link takes me right back to this page.

O.K., I'm confused.

Hi Mindy and welcome

the first few posts by new members are pre-moderated(visible only to mods till approved) to avoid influx of spammers and other yucky stuff so it sometimes takes a little while for your first few posts to show. Once you are an active member here and posting remains within our guidelines, your posts will show immediately to the forums

I merged your two threads into one for clarity

here is the link to our Peripheral Neuropathy forum at NeuroTalk. Members there may be able to shed some light on your condition
http://neurotalk.psychcentral.com/forum20.html

Cheri

Thank you Cheri

AWWW minge. Sounds like you are having a terrible time. so sorry.

I had a surgery when I was around 14 in my pubic/navel area. I won't go into details but I sort of know what you are talking about. I have a numb, cold spot right around my navel. Anytime a nerve is cut or injured it does do wierd things. That tingling thing you talked about in the upper thigh and hip area I sort of understand that. Anytime you mess with a nerve IF it is going to heal it is going to take a really Long time. That was 45 years ago for me and occassionally I do have those sensations you describe but they are much less now. They were much worse during my childbearing years.

I also have had some other nerve injuries throughout my life and it did take a long time to heal and I experienced Many strange sensations along with numbness and pain. I believe that is called paresthesia.

Hi Mindy,

Happy that you found us. Sorry to hear about your mastectomy. My aunt suffered breast cancer for the last 9 years and she always told me she felt some strange nerve sensations.

Just a couple of thoughts. The dip and fluctuations in estrogen when going through menopause can actually heighten pain and nerve sensitivity. And the fact that you feel it in your legs and pelvic area mean it could be related to menopause since there are many nerves and estrogen receptors in that area. Might want to talk to GYN doc about just getting baseline testing on sex hormones. I know with breast cancer that estrogen can be a nono.

Also make sure to et your B12 and Folates checked. Somtimes supplementing that can help neuropathy type symptons.

Dont know about the tingling in the front of your brain But your pituitatry gland is up there and is involved in meopause as it stops communicating with the sex glands.

I appreciate the help you all have given me. It's good to know that others have an idea of this. Like everything else, it comes down to yet another thing to simply live with. So I will

Thanks,

Minge

Minge,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene