Home Menu

Site Navigation



New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!

NeuroTalk Support Groups > > >

Aussie with Idiopathic Trigeminal Neuropathy

Reply
 
Thread Tools Display Modes
Old 02-14-2008, 12:00 AM #1
Batman1969 Batman1969 is offline
New Member
  
Join Date: Feb 2008
Posts: 4
15 yr Member
Batman1969 Batman1969 is offline
New Member
 
Join Date: Feb 2008
Posts: 4
15 yr Member
Unhappy Aussie with Idiopathic Trigeminal Neuropathy
Hello.

I'm a 39 year old Australian male.

According to one neuro, I have: Idiopathic Trigeminal Neuropathy (Sensory).
V2 and V3 on right side is affected.... started as a numb bottom lip and has spread to the entire two branches in 3 years. I guess it is chronic.

Sensations include: stinging, numbness, tightness, prickles and aching. Luckily, I have no motor disfunction.

I've had every test and scan available and I have even been told that it may be of psychological origin.

I know this condition is considered to be pretty soft in comparison to other neuropathic disorders, and reading about sufferers of more serious neuro diseases is hard for me to do... I really feel sorry for those people.

I have joined this forum because it (ITN) has, and is still having a destructive influence on my state of mind, my home life and my career is almost dead in the water.

I still have not heard of or met or spoken to anyone who has this disorder, and most of my peers and family don't understand my situation as there are no physical signs.

Two questions:

How do you know when you are truly depressed?

Is there anyone out there with the same symptoms as me?

AW.
Batman1969 is offline   Reply With QuoteReply With Quote
Old 02-14-2008, 01:24 AM #2
Koala77's Avatar
Koala77 Koala77 is offline
Legendary
  
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Koala77 Koala77 is offline
Legendary
Koala77's Avatar
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Default
Hello Batman from another Aussie.

I don't have the same diagnosis as you, (I have MS) but I thought it'd nice be for you to receive a welcome from another member from Down Under.

It's nice to "meet" you.


Quote:
Originally Posted by Batman1969 View Post
Hello.

I'm a 39 year old Australian male.................

According to one neuro, I have: Idiopathic Trigeminal Neuropathy (Sensory).
__________________
Eastern Australian Daylight Savings Time
and
my temperature


.
Koala77 is offline   Reply With QuoteReply With Quote
Old 02-14-2008, 01:29 AM #3
Batman1969 Batman1969 is offline
New Member
  
Join Date: Feb 2008
Posts: 4
15 yr Member
Batman1969 Batman1969 is offline
New Member
 
Join Date: Feb 2008
Posts: 4
15 yr Member
Default
Quote:
Originally Posted by Koala77 View Post
Hello Batman from another Aussie.

I don't have the same diagnosis as you, (I have MS) but I thought it'd nice be for you to receive a welcome from another member from Down Under.

It's nice to "meet" you.
Thanks for posting back Koala77... you just put my whinings into a clearer perspective.

Hope you are doing OK.

AW.
Batman1969 is offline   Reply With QuoteReply With Quote
Old 02-14-2008, 01:58 AM #4
Darlene's Avatar
Darlene Darlene is offline
Legendary
  
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Darlene Darlene is offline
Legendary
Darlene's Avatar
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Default
Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

I have listed a couple of links to assist you. You will find plenty of members there to assist you.

http://neurotalk.psychcentral.com/forum20.html

http://neurotalk.psychcentral.com/forum24.html

Again welcome, looking forward to seeing you around.

Darlene

__________________

.

"Life without God is like an unsharpened pencil -- it has no point.
Darlene is offline   Reply With QuoteReply With Quote
Old 02-14-2008, 03:59 PM #5
DM's Avatar
DM DM is offline
Legendary
  
Join Date: May 2007
Location: Around
Posts: 10,109
15 yr Member
DM DM is offline
Legendary
DM's Avatar
 
Join Date: May 2007
Location: Around
Posts: 10,109
15 yr Member
Default
Hi Batman and Welcome to NeuroTalk. I'm sorry that I'm not familar w/ your DX, but I do want to make sure you feel at home here. There are alot of very informative and helpful forums and members here.

Glad to have you with us....
__________________
DM




.
DM is offline   Reply With QuoteReply With Quote
Old 02-15-2008, 12:51 AM #6
Batman1969 Batman1969 is offline
New Member
  
Join Date: Feb 2008
Posts: 4
15 yr Member
Batman1969 Batman1969 is offline
New Member
 
Join Date: Feb 2008
Posts: 4
15 yr Member
Default
Thanks daisymay.

AW.
Batman1969 is offline   Reply With QuoteReply With Quote
Old 02-15-2008, 08:39 AM #7
ali12's Avatar
ali12 ali12 is offline
Magnate
  
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
ali12 ali12 is offline
Magnate
ali12's Avatar
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
Heart
hey,
Welcome to Neurotalk, if you need anything just ask, I will try and help you if I can.
Thanks
__________________
To the World you may be one person, but to one person, you may be the World.
ali12 is offline   Reply With QuoteReply With Quote
Old 02-17-2008, 08:03 AM #8
Batman1969 Batman1969 is offline
New Member
  
Join Date: Feb 2008
Posts: 4
15 yr Member
Batman1969 Batman1969 is offline
New Member
 
Join Date: Feb 2008
Posts: 4
15 yr Member
Default
Thanks Ali.

AW.
Batman1969 is offline   Reply With QuoteReply With Quote
Old 02-17-2008, 10:49 AM #9
AfterMyNap's Avatar
AfterMyNap AfterMyNap is offline
Wise Elder
  
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
AfterMyNap AfterMyNap is offline
Wise Elder
AfterMyNap's Avatar
 
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
Default
Hi, Batman! Welcome to NeuroTalk!
__________________
—Cindy

For every day I choose to play,
I set aside a day to pay.
—AMN

"Sometimes plastic wrap just won't cling, no matter how much money you put in the meter."

—From the Book of True Wizdom
AfterMyNap is offline   Reply With QuoteReply With Quote
Reply

« Previous Thread | Next Thread »
Thread Tools
Display Modes
Linear Mode Linear Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Ganglionic Acetylcholine Receptor Antibody and "idiopathic" neuropathy fanfaire Peripheral Neuropathy 2 11-05-2011 04:20 PM
G'day from another Aussie Koala77 New Member Introductions 10 01-21-2008 09:57 AM
Looking for New Neuro.(Aussie) Liz Mann Peripheral Neuropathy 19 01-01-2008 04:09 AM
Ok test results = idiopathic neuropathy? jimj Peripheral Neuropathy 19 10-07-2007 10:05 AM
New member with idiopathic neuropathy doxey New Member Introductions 4 05-01-2007 08:11 PM


All times are GMT -5. The time now is 01:52 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home