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Aussie with Idiopathic Trigeminal Neuropathy

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Old 02-14-2008, 12:00 AM #1
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Unhappy Aussie with Idiopathic Trigeminal Neuropathy
Hello.

I'm a 39 year old Australian male.

According to one neuro, I have: Idiopathic Trigeminal Neuropathy (Sensory).
V2 and V3 on right side is affected.... started as a numb bottom lip and has spread to the entire two branches in 3 years. I guess it is chronic.

Sensations include: stinging, numbness, tightness, prickles and aching. Luckily, I have no motor disfunction.

I've had every test and scan available and I have even been told that it may be of psychological origin.

I know this condition is considered to be pretty soft in comparison to other neuropathic disorders, and reading about sufferers of more serious neuro diseases is hard for me to do... I really feel sorry for those people.

I have joined this forum because it (ITN) has, and is still having a destructive influence on my state of mind, my home life and my career is almost dead in the water.

I still have not heard of or met or spoken to anyone who has this disorder, and most of my peers and family don't understand my situation as there are no physical signs.

Two questions:

How do you know when you are truly depressed?

Is there anyone out there with the same symptoms as me?

AW.
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Old 02-14-2008, 01:24 AM #2
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Hello Batman from another Aussie.

I don't have the same diagnosis as you, (I have MS) but I thought it'd nice be for you to receive a welcome from another member from Down Under.

It's nice to "meet" you.


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Hello.

I'm a 39 year old Australian male.................

According to one neuro, I have: Idiopathic Trigeminal Neuropathy (Sensory).
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Old 02-14-2008, 01:29 AM #3
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Originally Posted by Koala77 View Post
Hello Batman from another Aussie.

I don't have the same diagnosis as you, (I have MS) but I thought it'd nice be for you to receive a welcome from another member from Down Under.

It's nice to "meet" you.
Thanks for posting back Koala77... you just put my whinings into a clearer perspective.

Hope you are doing OK.

AW.
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Old 02-14-2008, 01:58 AM #4
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Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

I have listed a couple of links to assist you. You will find plenty of members there to assist you.

http://neurotalk.psychcentral.com/forum20.html

http://neurotalk.psychcentral.com/forum24.html

Again welcome, looking forward to seeing you around.

Darlene

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Old 02-14-2008, 03:59 PM #5
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Hi Batman and Welcome to NeuroTalk. I'm sorry that I'm not familar w/ your DX, but I do want to make sure you feel at home here. There are alot of very informative and helpful forums and members here.

Glad to have you with us....
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Old 02-15-2008, 12:51 AM #6
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Thanks daisymay.

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Old 02-15-2008, 08:39 AM #7
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hey,
Welcome to Neurotalk, if you need anything just ask, I will try and help you if I can.
Thanks
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Old 02-17-2008, 08:03 AM #8
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Thanks Ali.

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Old 02-17-2008, 10:49 AM #9
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Hi, Batman! Welcome to NeuroTalk!
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