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New Member Introductions Welcome to our community! Come in and introduce yourself to other members!! |
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#1 | ||
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New Member
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My name is Melissa and I am 28 years old. I have been diagnosed with a sensory inflamatory neuropathy, with symptoms of CIDP. I have been suffering for over a year now, it started with tingling in my hands and feet. My GP told me it was all in my head, within a month my feet were numb and up to my calves. I finally found a good neurologist, but by this time it had travelled up to above my knees and into my hands and arms. My balance was off do much that I couldn't have a shower without falling. I couldn't wear jeans because I couldn't do up the zippers. The elastics for my hair hurt my hands and I couldn't do my hair anymore so off she came. I couldn't print or use the computer, and the doc was talking about taking my drivers license away. After many test and much pain I was put on Gabapentin( sorry if I spelled wrong). I was taking up to 4200 mg a day to help me get by. After six months of this my wonderful new neurologist put me on the IVIG treatment. I go 5 days a month every mont, and wow! I can walk again, I can put on my own jeans again. I can go on this web site and post! Is there anyone else out there who is my age, female and has these same symptoms? The doc doesn't knwo why this happened to me, he is very curious . One thought was a vitamin B6 overload, one other was a B deficiency. But who knows. They did blood work before the treatment to send to the mayo clinic along with my nerve sample, but they lost the blood, so I guess they will never know why. Hopefully the IVIG will continue to help, I've been on it for 5 months now. Sorry so long. Talk soon!
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#2 | |||
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Elder
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Welcome MessyMel to NeuroTalk! Glad you found our forum. I am going to copy your intro to our New Member Intro Forum so more people will get to know you!
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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#3 | |||
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Member
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Not a woman. Don't have what you have. And I'm closing in on 40...
BUT! One big warm, tight, hug, handshake and howdy, moose-size official type welcome to the site. This place is amazing! I'm not real familiar with some of the terms you used, but I am with the symptons. (I have the MS). Glad you have a good neuro and glad you're here. You are not alone. ![]() You are one of us. ![]() And we are here to help. ![]()
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You can't have everything. Where would you put it? -Steven Wright Once you change your mind, you can change your life. -Della Reese . Always outnumbered... Never outgunned . *I* am the MonSter that MS fears |
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#4 | ||
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Grand Magnate
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Hi Messymel,
![]() Here is the link http://neurotalk.psychcentral.com/forum20.html Look forward to seeing you around the board. |
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#5 | |||
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Elder
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Hi Mel
![]() ![]() Please feel free to roam around and join in anywhere.... Hope to see you around the boards!!! ![]() Abbie
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My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
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#6 | |||
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Legendary
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Hello messymel and Welcome to NeuroTalk. Everyone here is so helpful and friendly, so take a look around, ask questions, join in on the threads and make yourself at home.
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DM . |
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#7 | |||
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Magnate
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Hello and welcome to Neurotalk - you will find many great people here!!
If you need anything just ask - I will try and help you if I can. Thanks and i'm looking forward to seeing you around the forum soon!! Alion
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To the World you may be one person, but to one person, you may be the World. |
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#8 | |||
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Legendary
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Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.
Again welcome, looking forward to seeing you around. Darlene ![]()
__________________
. "Life without God is like an unsharpened pencil -- it has no point.
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#9 | |||
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Wise Elder
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Hi, Messymel!
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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#10 | |||
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Senior Member
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Hi Melissa! I am glad that you are feeling better! Welcome to Neurotalk...we are happy that you are here!!
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. . LOVE DORRIE!! |
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