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Old 03-12-2008, 10:52 PM #1
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My name is Melissa and I am 28 years old. I have been diagnosed with a sensory inflamatory neuropathy, with symptoms of CIDP. I have been suffering for over a year now, it started with tingling in my hands and feet. My GP told me it was all in my head, within a month my feet were numb and up to my calves. I finally found a good neurologist, but by this time it had travelled up to above my knees and into my hands and arms. My balance was off do much that I couldn't have a shower without falling. I couldn't wear jeans because I couldn't do up the zippers. The elastics for my hair hurt my hands and I couldn't do my hair anymore so off she came. I couldn't print or use the computer, and the doc was talking about taking my drivers license away. After many test and much pain I was put on Gabapentin( sorry if I spelled wrong). I was taking up to 4200 mg a day to help me get by. After six months of this my wonderful new neurologist put me on the IVIG treatment. I go 5 days a month every mont, and wow! I can walk again, I can put on my own jeans again. I can go on this web site and post! Is there anyone else out there who is my age, female and has these same symptoms? The doc doesn't knwo why this happened to me, he is very curious . One thought was a vitamin B6 overload, one other was a B deficiency. But who knows. They did blood work before the treatment to send to the mayo clinic along with my nerve sample, but they lost the blood, so I guess they will never know why. Hopefully the IVIG will continue to help, I've been on it for 5 months now. Sorry so long. Talk soon!
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Old 03-14-2008, 10:06 PM #2
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Welcome MessyMel to NeuroTalk! Glad you found our forum. I am going to copy your intro to our New Member Intro Forum so more people will get to know you!
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Old 03-14-2008, 10:58 PM #3
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Not a woman. Don't have what you have. And I'm closing in on 40...

BUT!

One big warm, tight, hug, handshake and howdy, moose-size official type welcome to the site. This place is amazing!

I'm not real familiar with some of the terms you used, but I am with the symptons. (I have the MS). Glad you have a good neuro and glad you're here.

You are not alone.
You are one of us.
And we are here to help.
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Old 03-14-2008, 11:10 PM #4
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Hi Messymel,

to NT. While I have not experienced your symptoms I bet there are some folks that could weight in over in the PN forum.

Here is the link

http://neurotalk.psychcentral.com/forum20.html

Look forward to seeing you around the board.
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Old 03-15-2008, 08:15 AM #5
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Hi Mel and


Please feel free to roam around and join in anywhere....

Hope to see you around the boards!!!

Abbie
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Old 03-15-2008, 08:24 AM #6
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Hello messymel and Welcome to NeuroTalk. Everyone here is so helpful and friendly, so take a look around, ask questions, join in on the threads and make yourself at home.

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Old 03-15-2008, 08:30 AM #7
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Hello and welcome to Neurotalk - you will find many great people here!!

If you need anything just ask - I will try and help you if I can.

Thanks and i'm looking forward to seeing you around the forum soon!!

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Old 03-17-2008, 01:31 AM #8
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Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene



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Old 03-17-2008, 08:38 AM #9
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Hi, Messymel! Welcome to NeuroTalk!
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Old 03-17-2008, 11:09 PM #10
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Hi Melissa! I am glad that you are feeling better! Welcome to Neurotalk...we are happy that you are here!!
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