my name is desiree when i was7 i had a brain absess and 2 mastoid ektemes doctors removed a piece of my skull in right front temp area said it would fuse back completely, never did still have a very tender 2 inch soft spot. if i were to get hit there it could kill me. but i'm almost 30 and still here so alls good right? anyhow, they had me on dilantin for only a year following surgery and i did very well for almost 10 yrs then i started having "panic attacks" one a month at first then 2,3,4 then none for a year or so cameback 1,2,3,4 a mo then 10 a week then up to 14xs a day. dr. gave me xanax it didn't stop the attacks but made me not really care they were happening. i tried explaing to every er doc there not attacks they're siezures possibly followed by some panic cause what the heck is going on w/ my brain? most would't even do an eeg even given my history they alll said it was my nervous system, righty o! it got so unberable w/ 3 kids to leave the house the noises and lights (especially florecents) in places instantly sent me into an episode and still 70% ofthe time do. then i quit driving even though dr never said to because i would get back home and if it wern't for the pkgs. in my car i'd have no clue where i'd been, scary! finally i quit going anywhere period for weeks at a time. depression set in and i started losing my mind. i was a freak . finally last mo after getting insurance i pushed my way into a neurologist who alo told me what i was describing wasn't siezres but because of history when 7 i should be on meds. basically she said here your not having seizures but take this anti med. ok.......... it sat on the counter for a wk or so not having seizures why take meds? finally i convinced them to do eeg. i had so much miss firing going on they had to stop at the breathing part cause tech was scared if we cont. i would go into grandmal. she literaly ran out and grabbed the same dr who said i wasn't having seizres came back and asked if i had started the meds .... no, why should have i? you need to be on them imed. after some discussion i went home and started that first days dose WHOA!!! dizzy dizzy and my eyes could hardly focus every thing was so bright i had to wear sun glasses for a week just to watch T.V. but its evened out now and i'm slowly starting to feel less freakish still have a hard time w/ more than 1 noise at a time and lights too but i'm learning to cope hope fully soon i'll learn to live again.

Hi Desiree and welcome to Neuro Talk. Here is the link to our Epilepsy forum..http://neurotalk.psychcentral.com/forum11.html

There is much good information regarding seizures there.

Hi Desiree! Welcome to NeuroTalk!

Welcome to NeuroTalk, Desiree. You have had quite a ride there. Glad you found us, as you'll find the most caring members here.

Please make yourself at home.

Desiree,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

So glad you found Neuro Talk...great people here....

Hi Desireewelocme To Neurotalk