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Old 04-12-2008, 07:04 AM #1
Parkie Patty Parkie Patty is offline
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Default Newbie and Patch Person
Hi all---

I'm new to this site. Glad I found it. I was in the clinical trial for the Neupro Patch for almost 3 years. I had absolutely no problems with the patch. It gave me back my life as normal as it could be. I loved it. I have now gotten off the patch and am back on Mirapex, which I started on when diagnosed in January 2005. I was excited when I found out about the patch study. Now, to hear about the recall has left me very angry and lost. So many questions. How many patches were crystallized?? How did this all come about?? Why can't the question, "Will it be back on the market?" be answered. I feel like we are being left in the dark. Even my Neurologist is frustrated. I spoke to someone at UCB who stated that we would be reimbursed for unused patches. That's all well and good but I just want the patch back. Why is there so little info out on this?? I know others that are feeling the same. We've been on the net searching and found the same "excuse" being used. I am just at a lost. The ole' saying...Nothing good lasts forever. Thanks for letting me vent.
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Old 04-12-2008, 08:12 AM #2
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hi patty and welcome to neurotalk.

i copied your post to the pd forum. here is the link:
http://neurotalk.psychcentral.com/sh...ad.php?t=43384
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Old 04-12-2008, 09:10 AM #3
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Hi Parkie Patty! Welcome to NeuroTalk!
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Old 04-12-2008, 10:50 AM #4
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Hello Patty and another Welcome to NeuroTalk here. Sorry I don't know anything about the patch your'e talking about, but just wanted to tell you to browse around and make yourself at home.
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Old 04-12-2008, 09:19 PM #5
Parkie Patty Parkie Patty is offline
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Default New Welcome
Thanks for the warm welcome from all of you. I guess I vented in the wrong forum. Sorry. So, let me introduce myself. I'm married to my best friend. Diagnosed with PD in '05. My mom had PD for 27 yrs. and also diagnosed at 48 yrs. old. I love to garden. No kids, well, not really...we have 5 boys....a cat (Buddy) and four llamas (Flash, Moondance, Treacle, Xipe). We take the llamas to Nursing Homes for pet therapy. I'm looking forward to visiting this site often. Thanks for having it out there.

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Old 04-12-2008, 09:50 PM #6
Denny11737 Denny11737 is offline
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Reply to Parkie Patty,
I too have been in the Clinical Trials and I think mine was even longer than 3 years its seems, but I most certainly can imagine what you are going through. I have a 3 month supply that I just begining to start on, but sooner or later I am sure I will have to switch over Mirapex. I just found this forum a few minutes ago so I am new.
Denny from Mansfield, Texas
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Originally Posted by Parkie Patty View Post
Hi all---

I'm new to this site. Glad I found it. I was in the clinical trial for the Neupro Patch for almost 3 years. I had absolutely no problems with the patch. It gave me back my life as normal as it could be. I loved it. I have now gotten off the patch and am back on Mirapex, which I started on when diagnosed in January 2005. I was excited when I found out about the patch study. Now, to hear about the recall has left me very angry and lost. So many questions. How many patches were crystallized?? How did this all come about?? Why can't the question, "Will it be back on the market?" be answered. I feel like we are being left in the dark. Even my Neurologist is frustrated. I spoke to someone at UCB who stated that we would be reimbursed for unused patches. That's all well and good but I just want the patch back. Why is there so little info out on this?? I know others that are feeling the same. We've been on the net searching and found the same "excuse" being used. I am just at a lost. The ole' saying...Nothing good lasts forever. Thanks for letting me vent.
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Old 04-13-2008, 05:46 AM #7
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Hi Patty and welcome to NT. Your "children" sound wonderful! So glad you found the website!
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Old 04-14-2008, 01:07 AM #8
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Patty,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene
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