Home Menu

Site Navigation



New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!

NeuroTalk Support Groups > > >

Newbie and Patch Person

Reply
 
Thread Tools Display Modes
Old 04-12-2008, 07:04 AM #1
Parkie Patty Parkie Patty is offline
Junior Member
  
Join Date: Apr 2008
Location: Richmond Twp. MI
Posts: 7
15 yr Member
Parkie Patty Parkie Patty is offline
Junior Member
 
Join Date: Apr 2008
Location: Richmond Twp. MI
Posts: 7
15 yr Member
Default Newbie and Patch Person
Hi all---

I'm new to this site. Glad I found it. I was in the clinical trial for the Neupro Patch for almost 3 years. I had absolutely no problems with the patch. It gave me back my life as normal as it could be. I loved it. I have now gotten off the patch and am back on Mirapex, which I started on when diagnosed in January 2005. I was excited when I found out about the patch study. Now, to hear about the recall has left me very angry and lost. So many questions. How many patches were crystallized?? How did this all come about?? Why can't the question, "Will it be back on the market?" be answered. I feel like we are being left in the dark. Even my Neurologist is frustrated. I spoke to someone at UCB who stated that we would be reimbursed for unused patches. That's all well and good but I just want the patch back. Why is there so little info out on this?? I know others that are feeling the same. We've been on the net searching and found the same "excuse" being used. I am just at a lost. The ole' saying...Nothing good lasts forever. Thanks for letting me vent.
Parkie Patty is offline   Reply With QuoteReply With Quote
Old 04-12-2008, 08:12 AM #2
Curious Curious is offline
Yappiest Elder Member
  
Join Date: Aug 2006
Location: Texas
Posts: 13,418
15 yr Member
Curious Curious is offline
Yappiest Elder Member
 
Join Date: Aug 2006
Location: Texas
Posts: 13,418
15 yr Member
Default
hi patty and welcome to neurotalk.

i copied your post to the pd forum. here is the link:
http://neurotalk.psychcentral.com/sh...ad.php?t=43384
__________________

.
Curious is offline   Reply With QuoteReply With Quote
Old 04-12-2008, 09:10 AM #3
AfterMyNap's Avatar
AfterMyNap AfterMyNap is offline
Wise Elder
  
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
AfterMyNap AfterMyNap is offline
Wise Elder
AfterMyNap's Avatar
 
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
Default
Hi Parkie Patty! Welcome to NeuroTalk!
__________________
—Cindy

For every day I choose to play,
I set aside a day to pay.
—AMN

"Sometimes plastic wrap just won't cling, no matter how much money you put in the meter."

—From the Book of True Wizdom
AfterMyNap is offline   Reply With QuoteReply With Quote
Old 04-12-2008, 10:50 AM #4
DM's Avatar
DM DM is offline
Legendary
  
Join Date: May 2007
Location: Around
Posts: 10,109
15 yr Member
DM DM is offline
Legendary
DM's Avatar
 
Join Date: May 2007
Location: Around
Posts: 10,109
15 yr Member
Default
Hello Patty and another Welcome to NeuroTalk here. Sorry I don't know anything about the patch your'e talking about, but just wanted to tell you to browse around and make yourself at home.
__________________
DM




.
DM is offline   Reply With QuoteReply With Quote
Old 04-12-2008, 09:19 PM #5
Parkie Patty Parkie Patty is offline
Junior Member
  
Join Date: Apr 2008
Location: Richmond Twp. MI
Posts: 7
15 yr Member
Parkie Patty Parkie Patty is offline
Junior Member
 
Join Date: Apr 2008
Location: Richmond Twp. MI
Posts: 7
15 yr Member
Default New Welcome
Thanks for the warm welcome from all of you. I guess I vented in the wrong forum. Sorry. So, let me introduce myself. I'm married to my best friend. Diagnosed with PD in '05. My mom had PD for 27 yrs. and also diagnosed at 48 yrs. old. I love to garden. No kids, well, not really...we have 5 boys....a cat (Buddy) and four llamas (Flash, Moondance, Treacle, Xipe). We take the llamas to Nursing Homes for pet therapy. I'm looking forward to visiting this site often. Thanks for having it out there.

Parkie Patty
Parkie Patty is offline   Reply With QuoteReply With Quote
Old 04-12-2008, 09:50 PM #6
Denny11737 Denny11737 is offline
New Member
  
Join Date: Apr 2008
Posts: 3
15 yr Member
Denny11737 Denny11737 is offline
New Member
 
Join Date: Apr 2008
Posts: 3
15 yr Member
Default
Reply to Parkie Patty,
I too have been in the Clinical Trials and I think mine was even longer than 3 years its seems, but I most certainly can imagine what you are going through. I have a 3 month supply that I just begining to start on, but sooner or later I am sure I will have to switch over Mirapex. I just found this forum a few minutes ago so I am new.
Denny from Mansfield, Texas
Quote:
Originally Posted by Parkie Patty View Post
Hi all---

I'm new to this site. Glad I found it. I was in the clinical trial for the Neupro Patch for almost 3 years. I had absolutely no problems with the patch. It gave me back my life as normal as it could be. I loved it. I have now gotten off the patch and am back on Mirapex, which I started on when diagnosed in January 2005. I was excited when I found out about the patch study. Now, to hear about the recall has left me very angry and lost. So many questions. How many patches were crystallized?? How did this all come about?? Why can't the question, "Will it be back on the market?" be answered. I feel like we are being left in the dark. Even my Neurologist is frustrated. I spoke to someone at UCB who stated that we would be reimbursed for unused patches. That's all well and good but I just want the patch back. Why is there so little info out on this?? I know others that are feeling the same. We've been on the net searching and found the same "excuse" being used. I am just at a lost. The ole' saying...Nothing good lasts forever. Thanks for letting me vent.
Denny11737 is offline   Reply With QuoteReply With Quote
Old 04-13-2008, 05:46 AM #7
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
  
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default
Hi Patty and welcome to NT. Your "children" sound wonderful! So glad you found the website!
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
Old 04-14-2008, 01:07 AM #8
Darlene's Avatar
Darlene Darlene is offline
Legendary
  
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Darlene Darlene is offline
Legendary
Darlene's Avatar
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Default

Patty,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene
__________________

.

"Life without God is like an unsharpened pencil -- it has no point.
Darlene is offline   Reply With QuoteReply With Quote
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Hello, new person here... Bethann New Member Introductions 6 03-30-2008 09:27 AM
Hello from another person with TOS Monilynne Thoracic Outlet Syndrome 2 04-20-2007 02:00 PM
new person datdat New Member Introductions 2 04-06-2007 08:52 PM


All times are GMT -5. The time now is 07:27 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home