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04-13-2008, 01:49 PM
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Hello Old Friends, New Friends, Community Members and Internet Viewers:
Since my joining here in "Shhhhhhhhhhhh...." 11/2006," I have viewed many recognizable Usernames. Hope everyone accepts my apology for just lurking in the mist. Yes, I go back to "___________" in the summer of 2003. Much has changed since then except for the FACT that I'm still fighting the uphill battle for those of us still alive with what is now considered an, "Acquired Iatrogenic (Error In Treatment) Toxic Demyelinating Neuromuscular Disorder/Disease of the Central Nervous System." Yes friends, my research has taken the search engines from 1,500 links in 2003 to over 100,000 in 2006 back down to clean and back up again. My own personal status remains Retired on both SSDI and LTD. Some of you may remember as I made my waves through Washington DC. from Senate Offices to World Conferences. I've had European companies contact me for one reason or another. Many of my piers were not aware that Dr. Hugo Moser, MD at the Kennedy Krieger Institute in Baltimore, MD had been my silent mentor as he truly was there for me with his knowledge and directions which were right on target all the way up to even today. Most will remember Dr. Moser from the movie from the 90's called "Lorenzo's Oil," as he was portrayed by Peter Ustinov. Some of you right here at NeuroTalk know me pretty well. The truth of the matter is that I'm hoping to call N/T home. My own health has regressed somewhat and I myself will be in a major battle soon which just may have much to do with the outcome to how the "World Medical Organizations," re-act to the REAL Scenario to Central Pontine Myelinolysis. Now that I finally said hello to everyone, please if you remember me or not, take a minute and say hello. G-d Bless... Franky (Now Four Year Old Boston Terrier Neuro Service Companion and Current Study) and Breeze (That's Me)
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On 11/17/06 The National Institutes of Health's (NIH) National Institute of Neurological Disorders and Stroke (NINDS) became the first World Organization since it's founding 50 years ago to validate "CENTRAL PONTINE MYELINOLYSIS," as it is now added to the NINDS Information Pages. I personally notified Ms. Melanie Klietman, of NINDS while attending a NORD conference in Bethesda, MD. . |
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04-13-2008, 06:58 PM
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Legendary
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Hello and Welcome to NeuroTalk, or should I say Welcome back.
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DM . |
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04-13-2008, 07:05 PM
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Legendary
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Hello and a big welcome from me. We've not met before but I must say that I'm very pleased to make your acquaintence.
Sorry to hear that your health is declining, but I do hope you'll find the support that you seek, right here on NeuroTalk. 
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Eastern Australian Daylight Savings Time and my temperature . |
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04-13-2008, 07:28 PM
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Hi there.
Just wanted to add my warmest welcome. Hope you are having NOT A TOO BAD PAIN DAY!!! That's what I most wish for all of us!! Take care, Melody
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. CONSUMER REPORTER SPROUT-LADY . |
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04-13-2008, 08:55 PM
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Administrator
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how very good to see you posting WhataBreeze
 Welcome back! I know you will find many old friends here and lots of new ones too
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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04-14-2008, 12:48 AM
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Legendary
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 Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can. Again welcome, looking forward to seeing you around. Darlene 
__________________
. "Life without God is like an unsharpened pencil -- it has no point.
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04-14-2008, 06:33 PM
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Your kind welcomes are all much appreciated. Many of us continue to keep the positive attitude thats needed when confronted with these chronic illnesses. As my Father use to say, "Nothing good in life comes easy." I must say the initial direction I see in the short period I've put in this Forum is truly a very warm friendly and respected atmosphere. In time I look forward to make many friends again as I did in previous Forums. Looking forward to get back to posting again. Those demyelinated nerves of mine "Just ain't what they use to be." G-d Bless....
Franky and Breeze
__________________
On 11/17/06 The National Institutes of Health's (NIH) National Institute of Neurological Disorders and Stroke (NINDS) became the first World Organization since it's founding 50 years ago to validate "CENTRAL PONTINE MYELINOLYSIS," as it is now added to the NINDS Information Pages. I personally notified Ms. Melanie Klietman, of NINDS while attending a NORD conference in Bethesda, MD. . |
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WhataBreeze: CPM's Layman Advocate Survivor
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