Annette Coscia hello and welcome to neuro talk.
I have anesthesia dolorosa and the symptoms you decribed sound very much like mine. the thing that i do not get is you said nothing showed on an mir.
i can share with you that i have a neuro stimulator that helps me and probly saved my life. I cant have an mri because of my stimulator but i know that before i had it implanted my xray scan thing did show my lower right trigeminal nerve snapped, dammaged . so maybe it would be a good idea to search anesthesia dolorsa and see if anything relates to your sister.
I am here if you want to talk or ask questions. it dose sound like some type of neuralgia thought even if it dose not show on any mri ...it dose not always show up and that is a fact. you are a great sister to be helping and searching on behalf of your sister.!!
let me know if i can be of help.
many blessing to you.
Peace BMW

Hello Annette and Welcome to NeuroTalk. I can't help w/your questions, but I see BMW has offered up some advice. Please make yourself at home and I do hope your sister can find some relief soon.

Hi Annette and welcome to NeuroTalk. I hope your sister can find some relief with her condition. Hopefully someone here will be able to offer some assistance.

I'm so sorry that I'm unable to answer your question Annette, but I see BMW has given you some excellent advice. I wanted to welcome you to NeuroTalk anyway.

It sounds like your sister has been going through a really horrid time, and although she doesn't have trigeminal neuralgia, I was wondering if it would be worthwhile posting your question in that forum anyway. You never know when some-one else may have gone through something similar.

In case you haven't found it, here's the link: http://neurotalk.psychcentral.com/forum26.html