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#1 | ||
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Newly Joined
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I guess I've just become the newest member here. About two and a half months ago I started having severe burning pain almost everywhere but my head, though strongest around my upper back. I spent nearly a week in a hospital without getting any answers other than that it was most likely neuropathic pain before they discharged me--without diagnosis. Blood tests were normal, MRIs were normal, etc.
I'm currently on Lyrica 200mg 3xdaily and Fentanyl mcg/hr. Still no diagnosis, just a low enough amount of burn to notice another pain, one that hits hard between ten and thirty seconds after the original injury. And it hurts to be touched anywhere but my hands, feet, and head. I'm just a college student, barely old enough to drink, and I'm really scared because I don't understand why this is happening or how to fix it, and neither does my neurologist. Has anyone here heard of anything that causes this or how to fix? I really want to be able to go back to school next semester, but I can't with the level of pain killers I'm on and the level of pain I'm still in. |
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#2 | |||
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Wise Elder
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Hi, Aurorareed!
![]() That sounds miserable! ![]() http://neurotalk.psychcentral.com/forum12.html
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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#3 | |||
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Legendary
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Hello Aurora and Welcome to NeuroTalk. Sorry you are having so much pain, but I too, am wondering if the Dr's have mentioned Fibromyalgia to you. It is real and it is definitely painful.
I get alot of pain in the upper back also. (and have FM) I see a Rheumatologist for mine. Please make yourself at home. Glad you found us. ![]()
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DM . |
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#4 | |||
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Grand Magnate
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I just want to say welcome...those before me have given you some great info...hope you can find some answers or at least words of support...lots of great folks here at NT.
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My best friends live in my computer.... . Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain “Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo . Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004 . Watch my Olhipie Skiing.... . |
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#5 | |||
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Wisest Elder Ever
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Hi there - and welcome to NeuroTalk!
![]() I'm so sorry you're having so much pain....there are many wonderful people here. I hope you can find some answers.....I know you'll find support here. ![]()
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#6 | |||
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Legendary
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Welcome from me as well. You have my sympathy for all the pain you've been through. Although I do get pain myself, mine is completely different, and because a very different reason to your own.
I truly hope you get some answers soon, but in the meantime, make yourself at home. I'm so glad you found us. ![]()
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Eastern Australian Daylight Savings Time and my temperature . |
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