Hello,
I was in a car wreck in March. I had too much testing too early. I looked up when a test for cognition should be given and how. What I found was that the early tests are not that helpful and may only find preexisting conditions. And, I found out that going back and retaking the test would not help me return to work. I found a way to return to work and satisfy legal aspects. Is anybody else out there sick of testing, neuro, speech and other? I found that speech therapy testing was a negative. I did not recieve any benefit. I was not shown how I might increase
memory, other than for them to say do puzzles, help me increase attention ect. I am really sick of the whole thing I had to deal with.
Thanks for listening

Hi there. Welcome to Neurotalks.

You've had quite a rough time haven't you?

Well, you've come to the right place. We are very friendly and someone will pop up and direct you to the perfect forum for you.

So stick around, check in once in a while and you'll be helped.

Again, Welcome.

Take care,

After more than six years of many neurologists and geneticists and researchers ( metabolic and others) and the many tests each of them performed, I often felt like you, but looking back on the whole experience, I am grateful to all of them.

I am especially grateful for the testing and help given to me by a research veterinarian who led the way to discovering what disease I have. I learned that you never know what is going to be important. I also learned that all of these guys know a lot more than I do. I got treated well. And am grateful.

Hopefully, you'll be able to look back like I do, and appreciate the testing. Some day I'd like to list all of the diseases that I got tested for and did not have. The veterinarian, for instance, eliminated my having an adult onset Alexander disease so I am not the 31st person in the world, during the last 50 years, to get it..nor does my two brothers and older sister have it. Instead we are among some 400 families to have a vascular leukodystrophy, inherited from my mother who lived for 94 years.

It took everyone a long time to figure out what we had and a lot of tests. But that's the way medicine works: to eliminate (or confirm) the most likely of all the possible diseases, and do the same again and again until finally there is a confirmation...at which point, often there is no treatment available because the disease is an orphan disease, and does not warrant anyone trying to find a treatment to say nothing of a cure.

Oh dear you have been through a lot sandokco, and I can understand your resistance to further testing right now, but are you seeing a neurologist, and if so, have you considered changing to a different one before you give up altogether?

There are medications available now to help with some cognition problems, have they been suggested at all?

Here's the link to our Traumatic Head Injury Forum: http://neurotalk.psychcentral.com/forum92.html

Maybe you'll get the answers that you're looking for there.

Hi and welcome to NeuroTalk! You've been through a lot and I certainly hope you find the answers you're looking for. Glad to have you here!!

Hello and Welcome to NeuroTalk. Hope you make yourself at home here.

Hi, Sandokco! Welcome to NeuroTalk!

All that testing can sure wear on a person's spirit. I hope you'll find our little community a respite and a helpful source of information and support.

Hi, I am fine... just not happy with the establishment...God will take care of me...but I am trying to work within the system to hopefully decrease unnecessary testing(my opinion) and decrease the waste of healthcare $'s being spent on things that do not help.