[pemac]

I was diagnosed with RSD a few weeks ago. I have been put on lyrica, oxycontin, a nuerotin cream mixed with other stuff, and a lidoderm patch. It stems from a major knee surgery I had in Jan. It was my 3rd knee surgery in 6 years. I had a meniscus transplant with microfracture of the knee. I was off my leg for 8 weeks. About a month ago physical therapy started becoming extremely painful. And every active thing I do is very painful. An xray showed I had developed osteopenia in my tibia. A bone scan showed I have RSD. I do not have all the symptoms of it. The pain dr. said I am in the early stages of it and it is good they caught it early. I am suppose to get a nerve block as well. The symptoms I have are a burning sensation every 30 minutes or so and a lot of moderate to severe pain. I am wondering if it is easy to beat this. I was hoping to try to get pregnant but that has to be put on hold until I am off the meds. I really want to go off the meds in the next month. I hate taking all this stuff. I have also been off work since the surgery. I am a personal trianer and use to being active. The past 5 months are the most inactive I have ever been. I am not able to do simple activities such as ride a stationary bike due to the pain. I need to get my muscles to develope back to help stabilize my knee. I am wondering if nutrition can play a role to be out of pain and go off the meds. I am a pretty healthy eater overall. The past week I have been eating tons of fruits and veggies. I joined this site to learn more and try to beat this. I really want to overcome this asap and try to start having babies

[Abbie]

Hello Pemac and WELCOME to Neurotalk.

Here is the link to our RSD/CRPS Forum.
http://neurotalk.psychcentral.com/forum21.html

Please look at the useful information link at the top of the RSD forum. You will find many helpful links with an abundance of information.

Also feel free to roam around the forums and join in anywhere you feel comfortable.

I truly understand what you are dealing with at this time. I have RSD...I've been fighting it for 4+ years.

I wish I could tell you there is a "cure" for RSD. Unfortunately there is none at this time.

PLEASE know though that there are many treatments out there and I've heard that RSD can go into remission....

It looks like they have caught yours early and that is the best situation.... I have heard that nerve blocks can be very helpful in putting RSD into remission.

I have also heard that early diagnosis and agressive treatment with medicines and nerve blocks is a good thing.

Also, please know that no two people with RSD are the same and no two people with RSD respond the same way to the same medicines or treatments.

The RSD Forum has many caring and wonderful people there.... please feel free to ask any questions you may have.... someone will always be around shortly to help you in any way that we can.

I truly wish you the best.

Abbie

[Koala77]

Hello Pemac, and welcome to NeuroTalk from me as well.

I'm sorry to hear that you have been given an RSD diagnosis. You must have a thousand questions going through your head right now but Abasaki has given you some great information and because she's an RSD sufferer herself, she has a good idea what you're probably going through.

I'm sure you must know by now that RSD and MS (which I have), are similar in the context that they can't be cured at the moment, but much has been done with medical breakthroughs to control any of the nastier symptoms that we might have. Also please know that RSD (for you) and MS (for me), both can have long periods of remission.

Good luck with getting your's under control, and good luck with your baby making. We just love having new babies on the site.

[pemac]

Thank you. I kinda figured it was not cureable. I just want to be off the meds. I will check out that forum. I do have a lot of mixed feelings about it and some anger towards it since I have had so many knee surgeries, I feel like why can't I get a break. But I know I am not alone with this and I know it could be a lot worse. I have an aunt with a form of MS and she said she suffers mentally and is not in pain. But with hers she cannot strengthen any of her muscles. She has been supportive talking to me telling me how to take it. I am glad I came across this site. I know it will help to talk to people who are going through it. Since my husband does not really understand. I try to talk to him and vent but he is your typical male who doesn't listen half the time or just pretends to be. Anyway thanks for the responses and I will be checking into that forum.

[theMatrix777]

Originally Posted by pemac

Thank you. I kinda figured it was not cureable. I just want to be off the meds. I will check out that forum. I do have a lot of mixed feelings about it and some anger towards it since I have had so many knee surgeries, I feel like why can't I get a break. But I know I am not alone with this and I know it could be a lot worse. I have an aunt with a form of MS and she said she suffers mentally and is not in pain. But with hers she cannot strengthen any of her muscles. She has been supportive talking to me telling me how to take it. I am glad I came across this site. I know it will help to talk to people who are going through it. Since my husband does not really understand. I try to talk to him and vent but he is your typical male who doesn't listen half the time or just pretends to be. Anyway thanks for the responses and I will be checking into that forum.

Hi Pemac and Welcome to the forum. I haven't been a member at this one for very long but I have found it very informative so far. Everyone here has been very friendly and forthcoming with anything they can help with.

I have had RSD for almost 5yrs now. Started in right hand (surgery) and has now spread to both hands, arms both legs,hips,neck,spine. Pretty much all over. Anyway, I am sorry to hear you have been diagnosed with the monster, but early diagnosis is good. Don't worry about not having ALL the symptoms; nobody does usually. We are all different and this is a very unusual condition.

I do know people from other forums that have started their families with RSD. So it can be done! There are many personal websites with their own stories and then dozens of really good support groups like this one. So information is not lacking.

Only money for research for a cure and getting the public aware of the condition. That's what mine and a lot of RSD sufferers do with our websites. Try to get public and medical awareness of just RSD is. I know when I was diagnosed I had never heard of it! I bet you were the same way. And friends and families really don't understand. It's one of those, "you don't look sick". I don't know if you have experienced that yet, but be prepared....

There is so much I could tell you but I better stop for now. Again, welcome and I'm sure I'll see you around.

[ali12]

Hello and welcome to the forum!! If I can help you in any way please just let me know!

I suffer from RSD in my left leg and right arm - I developed it when I was 12 years old (I am now 13)

I'm looking forward to seeing you around the forum

Best wishes
Alison

[AfterMyNap]

Hi, Pemac! Welcome to NeuroTalk!