Hi! My name is Nancy. Im here in search of support, and hopefully a fresh perspective. My husband has stuff going on and we can't get a diagnosis. He has "staring seizures" & they are not epileptic. We have seen neurologists, psychiatrists, endocrinologists, neuropsychologists, and a rheumotologist. His symptoms are similar to lupus except the blood tests say no. I am at a total loss and he is frustrated. This weekend he went outside for 15 minutes & it was hot (we live in Texas) & when he came in he was very ill. and his body temp was 94.5. Normally he runs 98.6. He will be eatting dinner and just in mid bite..freeze & stare into space. Anywho, more about us..we have been married 18 years and as I said live in Texas. Looking forward to meeting everyone!!
Nancy

Hello Nancy and welcome to Neurotalk.

We have a wonderful group of members here on the site who do an excellent job of providing advice and support. I'm sure they'd be more than happy to help you with any queries that you have. You only have to ask!

Have a look around and join in any of the forums that takes your fancy, and please let us know if any of us can help you in any specific way.

Hi Nancy and welcome to NeuroTalk! I'm sorry your husband is having such a difficult time being diagnosed. It's so hard to be in limboland and not know what's causing the problems. Keep looking - there is a doctor out there that will be able to help you.

In the meantime please take a look in our Epilepsy and Seizure Disorders Forum. There might possibly be someone there that can offer you some advice. Here's the link http://neurotalk.psychcentral.com/forum11.html

Hello and welcome to Neurotalk - you will meet many great and supportive people here!!

I am so sorry to hear about your husband and that you are having a difficult time getting a diagnosis

If you need anything please don't hesitate to ask - I am more than happy to help you in any way I possibly can!!

Thanks and i'm looking forward to seeing you around the forum soon!!

Best wishes to you and your husband
Alison

Hi, Nancy! Welcome to NeuroTalk!

Hello Nancy and another Welcome to NeuroTalk here. Hope you take a look around and join in anywhere. Glad you found us.

Welcome to NT...so much to be learned here from a lot of great folks!!

I'm very happy to meet you. I'm also very sorry to hear about your husbands medical problems. How long have they gone on? It sounds like a terrible thing to have to deal with. It took six years for me to get a diagnosis for my illness, so it's obvious to me that most docs don't know as much as they think. I hope that you manage to find the right one, and that he can control or reverse your husband's illness. In the meantime you have all my best wishes, and I hope that things improve for you all. Good luck, Nancy.