Hello all! My daughter has cerebral palsy and a seizure disorder..mostly cluster seizures, and several times a day brief (10-15 sec.) tonic seizures. She has a VNS implant (since 2003) and is on Keppra and Lamictal (since...well a long time now..after nearly every AED out there!) We had much success on the Ketogenic diet when she was younger, was on it for 3 years, and it actually changed her seizure pattern. Anyway...don't want to bog it all down with too many details to start off with! :sunchai r:
Mainly came browsing here tonight after reading over the bazillion triggers....Tara's (my daughters) are MSG, Nitrates/Nitrites, Red dyes, and now we're wondering if she isn't sensitive to wheat/gluten, maybe even milk products! She's been having clusters now for 4 days, despite the Diastat (10mg) and 1mg sl Ativan. (given on seperate days). So, happy to be here..well, haha, sort of!! Pam (Tara's Mom)
McMinnville, Oregon