Hello all! My daughter has cerebral palsy and a seizure disorder..mostly cluster seizures, and several times a day brief (10-15 sec.) tonic seizures. She has a VNS implant (since 2003) and is on Keppra and Lamictal (since...well a long time now..after nearly every AED out there!) We had much success on the Ketogenic diet when she was younger, was on it for 3 years, and it actually changed her seizure pattern. Anyway...don't want to bog it all down with too many details to start off with! :sunchai r:
Mainly came browsing here tonight after reading over the bazillion triggers....Tara's (my daughters) are MSG, Nitrates/Nitrites, Red dyes, and now we're wondering if she isn't sensitive to wheat/gluten, maybe even milk products! She's been having clusters now for 4 days, despite the Diastat (10mg) and 1mg sl Ativan. (given on seperate days). So, happy to be here..well, haha, sort of!! Pam (Tara's Mom)
McMinnville, Oregon

Hi, Sense2Sea! Welcome to NeuroTalk!

Sorry to learn of Tara's condition, it has to be hard on both of you. I'm giving you a link to our CP forum where you'll find others who can help with your questions. Please feel free to join in anywhere.

CP:
http://neurotalk.psychcentral.com/forum52.html

Hi there Tara's Mom and welcome to Neurotalk!! So glad you joined us!

Hello Pam and welcome to NeuroTalk. Sorry to hear of your dau's troubles, but very glad you found us. NeuroTalk is such a caring community and I hope you'll check out our many forums and join in anywhere.

Pam, You face many challenges everyday, I hope you are able to get some rest here and there. I am a caregiver also for my husband with MS so we do have something in common...carry for someone we love dearly!!

I hope you will feel free to add to any forum. We have a great group of folks here at NT.

Hello and welcome to Neuro Talk sense2sea, you will find many helpful and caring people here, so do not hesitate to ask or answer. I know how hard seizures can be on a child, not to mention a parent, cause all you can do is hold them and that desire to fix it is so strong, praying and hoping your Daughter, can grow out of them, I ws blessed and my son grew out of it when he hit puberty and he had grand mal on both hemispheres. I would say about half a year after puberty the seizures ceased, don't hesitate to ask if you need to talk or have questions, again welcome to NT

Glad to hear that diet is helping, I was slowly starting sean on that diet too and puberty hit, cant even tell you how many meds we went through as I am sure you know about. again hang in there mom, there are many supportive souls here

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help.

I have listed the epilepsy forum below, their are a great number of listeners that are willing to help.

http://neurotalk.psychcentral.com/forum11.html

Give Tara a great BIG for me.

Again welcome, looking forward to seeing you around.

Darlene

Hi and Welcome to NeuroTalk sense2sea There is lots of room to roam here and you will meet some really nice people.

Hello and Welcome to Neurotalk - you will meet many great and supportive people here!!

I am so sorry to hear about everything that your daughter and yourself have and are currently going through

If I can help you in any way, please just let me know.

Take care of yourself and i'm looking forward to seeing you around the forum soon!

Alison

Hi Pam and welcome to Neurotalk! My hubby has CP as well.