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parkinsons for 8 years

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Old 09-16-2008, 10:17 AM #1
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Default parkinsons for 8 years
i was searching (google) for an answer to a question thats been bugging me for quite some time. i just had DBS (in April), and have been on and off ever since. when first adjusted i felt great, then slowly i would taper off to where i was no better off than before the surgury. every time i was tuned up it was great, only to slowly revert. i cut my meds down to 1 1/2 sinemet every three hours, 1 mirapex every other dose. i am now having to increase my meds, and even then sometimes i can't seem to avoid off periods. i have spent days where i am on very little. i am going to get adjusted in oct. has anybody had a similar experience? i am also wondering about the effect of alcohol and marijuana on parkinsons. is it harmful , will it effect the way that dbs and meds work ?
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Old 09-16-2008, 12:23 PM #2
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Good morning Kcgetz, and welcome to Neuro Talk here is a link to the parkinsons forum, ask and answer at will,

http://neurotalk.psychcentral.com/forum34.html

you will find some really heplful and caring people here, hope the link helps get you started here at NT, any questions do not hesitate to ask, again welcome to the boards
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Old 09-16-2008, 05:05 PM #3
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Hi and welcome to NeuroTalk!




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Old 09-17-2008, 07:56 AM #4
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Hello kc and welcome to NeuroTalk. I can't help with your question, but I do hope you'll take a look around and make yourself at home. Glad you found us.

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Old 09-17-2008, 09:21 AM #5
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Hi, Kcgetz! Welcome to NeuroTalk!

I see that Frank has directed you to the PD forum, and I'll add that you might also visit our medications forum here:
http://neurotalk.psychcentral.com/forum72.html

I hope you'll find our community friendly and supportive.
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Old 09-17-2008, 11:05 AM #6
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Lightbulb dearest KC - Welcome to Neurotalk!



I have been dxd w/PD for the last 15 years, I have not opted for DBS, yet this is not unusual, please go to the forum that my gracious Welcome lady has left for you -you will get responses...
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Old 09-18-2008, 01:47 AM #7
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Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help.

Again welcome, looking forward to seeing you around.

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Old 09-18-2008, 09:50 AM #8
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Hi and Welcome to Neuro Talk KCgetz.

Theres a lot of information on the forums here so I'm sure you will be able to get some answers. Good Luck!

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