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Hello from Fort McMurray

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Old 09-25-2008, 09:02 PM #1
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Smile Hello from Fort McMurray
Hi everyone. I'm a newbie to chat rooms totally. I was diagnosed with Trigeminal Neuralgia in March/08. I only have it in my eye / forehead area and after several different meds. I am still having some breakthrough pain when my meds. run out after 4-5 hours. I can't seem to find much information on it.

I was wondering if anyone else here has just the eye/forehead TN and what you are taking for the pain? I see my neurologist again on Monday and would love some suggestions. Thanks.....Bonnie
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Old 09-25-2008, 09:27 PM #2
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Hello and welcome to Neuro Talk here is a link to direct you to that forum
http://neurotalk.psychcentral.com/forum26.html

you will find many with help advice and info and many who are just really wonderful people here, feel free to jump in and ask and answer any where here at NT, again welcome to Neuro Talk
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Old 09-25-2008, 10:21 PM #3
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Hi Bonnie

I can't give you any advice but i just wanted to say a great big to Neuro Talk and i know you'll find the info and support you need here



Quote:
Originally Posted by Sundog30 View Post
Hi everyone. I'm a newbie to chat rooms totally. I was diagnosed with Trigeminal Neuralgia in March/08. I only have it in my eye / forehead area and after several different meds. I am still having some breakthrough pain when my meds. run out after 4-5 hours. I can't seem to find much information on it.

I was wondering if anyone else here has just the eye/forehead TN and what you are taking for the pain? I see my neurologist again on Monday and would love some suggestions. Thanks.....Bonnie
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Old 09-26-2008, 06:04 PM #4
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Hi Bonnie and welcome to NeuroTalk

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Old 09-27-2008, 09:23 AM #5
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Hello and Welcome to Neurotalk - you will meet many great and supportive people here!!

I am so sorry to hear about everything that you are currently going through

If you need anything, please don't hesitate to ask - I am more than happy to help you in anyway I possibly can!!

Thanks and I am looking forward to seeing you around the forum and in The Chat Rooms soon!!

Alison
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Old 09-27-2008, 11:26 PM #6
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welcome to NeuroTalk bonnie ... surf the site and join in ... you will find lots of friendly and helpful people here ... again ... welcome to NT
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Old 09-28-2008, 02:30 AM #7
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Hope things start to look up for you soon. weegot5kiz gave you a great forum that I hope will help. We have a super group of folks here at Neuro Talk who would love to help in any way you might need it.

I hope you will feel welcome to jump in and enjoy...take care!!
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Old 09-28-2008, 07:55 PM #8
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Smile thanks - sometimes I feel like a "burnt marshmallow"
Just wanted to say a big "thank you" for the warm welcome. I would love to hear what "meds" everyone else is on for their TN and what seems to work the best and not leave you spaced out so much, but strong enough to kill the pain. I'm looking forward to getting to know you as I learn more about TN. In friendship......Bonnie
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Old 09-29-2008, 01:19 AM #9
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Bonnie,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help.

Again welcome, looking forward to seeing you around.

Darlene
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Old 09-29-2008, 07:30 PM #10
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Quote:
Originally Posted by Sundog30 View Post
Hi everyone. I'm a newbie to chat rooms totally. I was diagnosed with Trigeminal Neuralgia in March/08. I only have it in my eye / forehead area and after several different meds. I am still having some breakthrough pain when my meds. run out after 4-5 hours. I can't seem to find much information on it.

I was wondering if anyone else here has just the eye/forehead TN and what you are taking for the pain? I see my neurologist again on Monday and would love some suggestions. Thanks.....Bonnie


Hi from a fellow Canadian,

I have trigeminal neuralgia (with a host of other issues too) - I get it in the right ear and side/back of my head - it's brutally painful so I sympathize with you. I take tegratol, but only during flare ups. Unfortunately it takes some time to kick in, it's not like an aspirin, I guess you have to reach a certain level in your blood stream. But once it kicks in it works great, but makes me very sleepy and somewhat nauseous (not a great combo).
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