Hii there
I am trying to sit a bit and type this message, although it is tough. I have Pudendal Neuralgia and sitting is just momentary. I just turned 40 this summer, and I live in Charlotte, NC. I am/was a hiker, biker, rock climber, runner, and musician. I play and teach guitar, although I haven't been able to work for several months.
My scenerio begins in July when I had a CT scan to find a burst cyst. I was in alot of pain. I thought the pain would go away and then I would be back to normal. A few weeks later, the pain was so severe, I was in the ER 4 times as a result, trying to find out what was wrong. I had been to GPs, GI docts, Gynes and had xrays, ekg, ultrasounds, pelvic exams, MRi and CT scans. The Gi doc did I upper GI and I had acid relux and I also had colon spasms so I was given drugs for that. All along I have had burning in the vaginal area, feelinglike it was on fire. No UTI, no infections... blah blah, finally referred to a Neurologist who thinks nerve pain.. pudendal. So I get some Neurontin prescribed. I am on only 900mg, and it is not working just yet, so I may get a higher dose. I have some Oxycodone I am taking for breakthrough pain, but my GP doesnt want to refer me to a Pain Management Dr.. he thinks I would become addicted? That is the run down.
I have not been able to teach guitar and am worried I wont have a business after this. I am glad to have found this board, and hope that I can contribute. I find it does help to express your feelings and talk to others.
thank you

Hi Jess and welcome to NeuroTalk. I'm sorry for all the pain you're having.
These forums are full of supportive people and information. Here is the link to our PN forum...http://neurotalk.psychcentral.com/forum20.html

We also have a Chronic Pain Forum....look around and jump in anywhere.

Thank you Alfie. I appreciate the welcome. :-)

Hi Jess and welcome to NeuroTalk! It sounds like you've been through alot. I hope you'll check out the links Alffe gave you. There are many caring and supportive people here at NT. Although we all have different conditions we all have one thing in common and that's the fact that we care about each other.

Please feel free to join in anywhere you feel comfortable. Glad you joined us!!

Thank you! I do feel better being able to talk to people. It is some kind of relief. Not physical, but psychological relief for me. I imagine it is for most. I do this, and keep a daily diary of my feelings, pain level, how meds work etc..

.... i hope you find answers soon ... here at NT we have lots of friendly, helpful, supportive people ... surf the threads and join in ... again welcome Jess to NT

Hi and welcome...hope you find some relief from your pain soon.

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help.

Again welcome, looking forward to seeing you around.

Darlene

Hello and welcome to Neuro Talk, Jess. Jump in anywhere, and especially in the forum that Alffe provided ask answer and get to know folks, you will find many that are kind and helpful here, again welcome to NT