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11-06-2008, 04:08 PM
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I stumbled on this site while searching for some info as to why I have so rapidly gone from a highly-functional person to someone who is groggy and has constant burning pain. I was diagnosed very early in my course with CRPS and am just going through the process of seeing if anything works. I am a neuro ICU nurse in a major medical center, but have never heard of this disorder before (more a head bleed/stroke/brain surgery unit). I'm devastated and a little underwhelmed by the treatment options for this-I swear they are throwing darts at a dart board. If ONE more doctor points out that I am anxious and tearful, I will snap (being a nurse, I have no fear and limited reverence for certain doctors). Uh, yeah, maybe the steroids, the fact that my entire life is in upheaval, and the fact that I have pain of a character that I have difficulty even describing could do that to ANY personality type! I'd be crazy if this didn't have some impact, yes? Just needed to put myself out there and see if there are others like me.
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| "Thanks for this!" says: | tamiloo (11-07-2008) |
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11-06-2008, 08:28 PM
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Senior Member
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hello and welcome to neurotalk .... sorry to hear about the difficulties you're facing right now ... i hope you get some answers soon ... there are lots of friendly and supportive people here at nt ... i hope to seen you in some of the forums soon ... i have included a link to the CRPS/RSDforum ... i hope this helps
http://neurotalk.psychcentral.com/forum21.html 
__________________
. . chicago,il . |
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| "Thanks for this!" says: | tamiloo (11-07-2008) |
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11-07-2008, 01:08 AM
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Legendary
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 Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible. I see that Debbie has given a link to get started with. Again welcome, looking forward to seeing you around. Darlene 
__________________
. "Life without God is like an unsharpened pencil -- it has no point.
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| "Thanks for this!" says: | tamiloo (11-07-2008) |
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11-07-2008, 02:47 AM
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Grand Magnate
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Just wanted to welcome you to NT...we have a great group of folks hangin out here, take care!!
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My best friends live in my computer.... . Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain “Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo . Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004 . Watch my Olhipie Skiing.... . |
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11-07-2008, 09:19 AM
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Magnate
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Hello and Welcome to Neurotalk - you will meet many great and support people here!!!
I am so sorry to hear about everything that you are currently going through . I have been batteling CRPS/RSD for nearly 2 years now. I have it in my left leg and right arm, I developed it when I was 12 years old, I am now 13. I know how scary it is so if you need anything or if you have any questions, please just let me know. Take care of yourself and pain-free . I look forward to seeing you around the RSD Forum soon!!Alison
__________________
To the World you may be one person, but to one person, you may be the World. |
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11-08-2008, 07:29 AM
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Wisest Elder Ever
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Hello and welcome to NeuroTalk!
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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11-09-2008, 07:16 AM
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Welcome to Neuro Talk, do not hesitate to post questions here at NT. you will find that there are a lot of kind and helpful people here, that in itself can be as good as an answer, but most times you get the kindness and an answer which is a win win, again welcome to NT
__________________
. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . |
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11-09-2008, 02:23 PM
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Senior Member
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Hi and Welcome to NeuroTalk. So glad you found us. I hope you find the information you are looking for. Good Luck!
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. Roadtrip Wannabe |
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11-11-2008, 01:38 PM
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New Member
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Hi , I'm new and I see you are having trouble with not only the diagnosis but just what to do and how is this going to change my life...me too !!!
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11-12-2008, 09:24 AM
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Legendary
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Hello llrn and welcome to NeuroTalk. Glad you found us, so please put your feet up and make yourself at home.
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DM . |
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