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Old 11-06-2008, 04:08 PM #1
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Confused New to the site and CRPS
I stumbled on this site while searching for some info as to why I have so rapidly gone from a highly-functional person to someone who is groggy and has constant burning pain. I was diagnosed very early in my course with CRPS and am just going through the process of seeing if anything works. I am a neuro ICU nurse in a major medical center, but have never heard of this disorder before (more a head bleed/stroke/brain surgery unit). I'm devastated and a little underwhelmed by the treatment options for this-I swear they are throwing darts at a dart board. If ONE more doctor points out that I am anxious and tearful, I will snap (being a nurse, I have no fear and limited reverence for certain doctors). Uh, yeah, maybe the steroids, the fact that my entire life is in upheaval, and the fact that I have pain of a character that I have difficulty even describing could do that to ANY personality type! I'd be crazy if this didn't have some impact, yes? Just needed to put myself out there and see if there are others like me.
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Old 11-06-2008, 08:28 PM #2
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hello and welcome to neurotalk .... sorry to hear about the difficulties you're facing right now ... i hope you get some answers soon ... there are lots of friendly and supportive people here at nt ... i hope to seen you in some of the forums soon ... i have included a link to the CRPS/RSDforum ... i hope this helps
http://neurotalk.psychcentral.com/forum21.html
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Old 11-07-2008, 01:08 AM #3
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Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible. I see that Debbie has given a link to get started with.

Again welcome, looking forward to seeing you around.

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Old 11-07-2008, 02:47 AM #4
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Just wanted to welcome you to NT...we have a great group of folks hangin out here, take care!!
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Old 11-07-2008, 09:19 AM #5
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Hello and Welcome to Neurotalk - you will meet many great and support people here!!!

I am so sorry to hear about everything that you are currently going through . I have been batteling CRPS/RSD for nearly 2 years now. I have it in my left leg and right arm, I developed it when I was 12 years old, I am now 13. I know how scary it is so if you need anything or if you have any questions, please just let me know.

Take care of yourself and pain-free . I look forward to seeing you around the RSD Forum soon!!

Alison
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Old 11-08-2008, 07:29 AM #6
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Hello and welcome to NeuroTalk!



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Old 11-09-2008, 07:16 AM #7
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Welcome to Neuro Talk, do not hesitate to post questions here at NT. you will find that there are a lot of kind and helpful people here, that in itself can be as good as an answer, but most times you get the kindness and an answer which is a win win, again welcome to NT
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Old 11-09-2008, 02:23 PM #8
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Hi and Welcome to NeuroTalk. So glad you found us. I hope you find the information you are looking for. Good Luck!


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Old 11-11-2008, 01:38 PM #9
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Confused newly diagnosed wit RSD
Hi , I'm new and I see you are having trouble with not only the diagnosis but just what to do and how is this going to change my life...me too !!!
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Originally Posted by llrn7470 View Post
I stumbled on this site while searching for some info as to why I have so rapidly gone from a highly-functional person to someone who is groggy and has constant burning pain. I was diagnosed very early in my course with CRPS and am just going through the process of seeing if anything works. I am a neuro ICU nurse in a major medical center, but have never heard of this disorder before (more a head bleed/stroke/brain surgery unit). I'm devastated and a little underwhelmed by the treatment options for this-I swear they are throwing darts at a dart board. If ONE more doctor points out that I am anxious and tearful, I will snap (being a nurse, I have no fear and limited reverence for certain doctors). Uh, yeah, maybe the steroids, the fact that my entire life is in upheaval, and the fact that I have pain of a character that I have difficulty even describing could do that to ANY personality type! I'd be crazy if this didn't have some impact, yes? Just needed to put myself out there and see if there are others like me.
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Old 11-12-2008, 09:24 AM #10
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Hello llrn and welcome to NeuroTalk. Glad you found us, so please put your feet up and make yourself at home.

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