[amwright76]

I am new to this forum. My son was diagnosed at 11mths with Dystonia. His Left foot is what is affected. He had not had any symptoms since he was about 18mths old. Now today he has had an episode last about 3 minutes where he had to drag his foot to get to the couch. He has always had a little problem in the morning with a little shuffling with his feet, but once he wakes up he is usually ok untill today. Has anyone ever heard of this where the symptoms get better and are practilly gone then come back so quickly. Any help would be apprecaited!!!

[lou_lou]

Originally Posted by amwright76

I am new to this forum. My son was diagnosed at 11mths with Dystonia. His Left foot is what is affected. He had not had any symptoms since he was about 18mths old. Now today he has had an episode last about 3 minutes where he had to drag his foot to get to the couch. He has always had a little problem in the morning with a little shuffling with his feet, but once he wakes up he is usually ok untill today. Has anyone ever heard of this where the symptoms get better and are practilly gone then come back so quickly. Any help would be apprecaited!!!

Hello and


I have episodes of dystonia yet it is because of the long term effect of Parkinson's Disease and the medications I take...
here is the forum for you to read and ask questions -
Movement Disorder's
http://neurotalk.psychcentral.com/forum65.html

&
Life in Motion Dystonia Fact Sheet

http://www.life-in-motion.org/factsheets/dystonia.html

[weegot5kiz]

Welcome to Neuro Talk, do not hesitate to explore the site and post your questions and concerns and advice, this place is filled with a lot of helpful and kind people, again welcome to NT

[Idealist]

Welcome to the NeuroTalk Forums! It's so good to meet you! It's always so terrible when illness strikes a child. At least us adults are better equipped to understand, even if we don't like it. I wish there was something I could say that would help your son, but unfortunately I'm not familiar with dystonia. I do hope that the flare he's been having fades away, and leaves him doing better. Good luck to you and him both!

[Darlene]

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene

[Kitty]

Hello and welcome to NeuroTalk!

[MelodyL]

Originally Posted by amwright76

I am new to this forum. My son was diagnosed at 11mths with Dystonia. His Left foot is what is affected. He had not had any symptoms since he was about 18mths old. Now today he has had an episode last about 3 minutes where he had to drag his foot to get to the couch. He has always had a little problem in the morning with a little shuffling with his feet, but once he wakes up he is usually ok untill today. Has anyone ever heard of this where the symptoms get better and are practilly gone then come back so quickly. Any help would be apprecaited!!!

Hello and Welcome.
My name is Melody. I hope you and your family had a joyful Thanksgiving. It's very stressful when you child is ill or has a medical condition.

You have found new friends here and I see that others have given you helpful links.

It's a start.

I hope you find some answers and that your son thrives as he grows.

All the best.
Melody

[FranksAngel]

hello and welcome to nt ... sorry to hear about your son ... there are lots of supportive and helpful people here and although i personally do not know anything about Dystonia, i am sure there are others here who do ... i hope you find answers soon ... and again ...

[ali12]

Hello and Welcome to Neurotalk, you will meet many great and supportive people here!!

I'm sorry to hear that your son suffers from Dystonia at such a young age , I really hope you can find something that can help ease some of his problems soon. I also suffer from Dystonia, although mine is as a result of a chronic pain condition (Complex Regional Pain Syndrome), I developed it when I was 12 years old and am now 13. The areas that are currently affected by the Dystonia and CRPS are my left leg and right arm. I have almost 2 "types" of Dystonia's, my leg is constantly locked rigid out to the side in eversion and my arm has a Dystonia that comes and goes whenever it feels like it!

I have tried so many medications to try and ease the Dystonia but nothing has worked to this point and we are now looking at going down the Botox route as we have read lots of articles that say that it can be useful (although we aren't sure if this could affect my CRPS). My Doctors and PT's also want to cast my leg from my hip downwards to try and stop the rotation.

If you ever want to talk, please know that I am here for you and that you are more than welcome to PM me.

Take care and all my best to you and your son.
Alison