Hello Karen, welcome to Neuro Talk, do not hesitate to follow those links to the specific forums and post your questions, concerns and or worries, folks here are wonderful helpful kind and a lot of fun to get to know. If you have any question dont hesitate and again welcome to NT

Welcome and hope you feel better soon.

Definitely seems as if small-fiber neuropathy, possibly due to metabolic syndrome--there's a much larger body of reserach evidence out there now than even a few years ago pointing to impaired glucose tolerance causing neural symptoms well before frank diabetes can be diagnosed--but yes, I am wondering from what you wrote how many of your symptoms may have another underlying etiology--and how many may have been exacerbated by medications.

It is interesting that you mention the gluten/celiac angle--gluten sensitivity can result in a very wide range of neural symptoms, including neuropathy and ataxia. And the current serological gold standard for celiac (that is, if an intestinal biopsy hasn't been done)--the anti-transglutaminase IgA test--seems to be correlated to some degree with the extent of villous damage of the intestine, so it often misses early stages. or those whose primary symptoms are neural rather than gastic.

I, and others, certainly have recommended that anyone with neural symptoms should cut down simple sugars and try a gluten-free trial--neither can hurt, and very often they seem to help (sugar and gluten are both neuroexcitatory and eliminating them may help damp down an overactive nervous system).

Don't know if you've posted at the neuropathy board, but it would be good to get some of the experts there to converse with you--if you want, you (or I) could do a cut and paste of your last post and let it be perused.

hello and welcome to neurotalk ... i hope you find answers soon ... there are lots of friendly and supportive people here ... and again ...

I don't know what particular test I had for the celiac disease, I need to check that out with the doc who ordered it and get a copy of the result.
Dr. Peltier of Vanderbilt ordered some labs for me, some of which were done there and some I will have done here. She reccommended 24 hour urines for heavy metals and the Athena testing. She mentioned a sleep latency test, but that seems to be more for people who have a fair degree of daytime sleepiness.
Since I have relentless hyperarousals, it is unclear if they are due to FMS, OSA or the dysaut. No one really knows how to sort this out for me and symptoms, especially the small fiber neuropathic pain have increased and spread to other areas.
Thanks for the feedback and I will continue to research your site for other ideas. Please feel free to make any helpful suggestions that you may have.
I don't eat a lot of sugar, it makes me sick actually, but I still eat foods with gluten and a fair amount of carbs. Hate to have to give that up as well, but if it helped it would be worth it.
Karen