Hello group, i am new to the site I am hoping to find some help and information her. Our son is having a average of 25 -30 seizures a month. I take him to his neurologist every month and he changes his medication but we still cannot get them under control. they are thinking that his shunt is malfuntioning and we may need to replace it. I was wondering if you knew of a site of place that I could go to find a possible video or reallly good information on the full procedure. any help would be great thanks dave

Hello and welcome to NeuroTalk. It is great to see you have come to be with our huge and loving family. There is a great group here to assist in how they can.

I have listed some links where you could find members in your area of need.

http://neurotalk.psychcentral.com/forum14.html

http://neurotalk.psychcentral.com/forum11.html

Give your little one a for me. Looking forward to seeing you around.

Darlene

Hi Dave and welcome to NeuroTalk! I'm so happy you've joined us here and hope that the forums Darlene recommended are helpful to you. Have you tried googling the procedure to see if maybe there are any sites? Good luck in your search and I hope you find the information you're seeking.

Hi Dave. Welcome to NeuroTalk! This is a great place to hang out with lots of nice and helpful people here.

Hello and welcome Dave, sorry about the childs seizures. Getting my sons meds just tweaked right was the hardest thing and it took some time and finally got it right and then he gains weight or his body changed and meds had to be adjusted and or changed, this does seem to be a major thing with seizures it takes time. I was fortunate it took a few meds at once but my sons seizures lessened and by the grace of god his seizures have been gone since puberty? dont ask me I have heard of a few others that grew out of them during puberty. I hope you take advantage of this site fully. Post you questions and concerns you have in the forums from those links. Folks around here are so helpful and really kind. Again sorry about the seizures, and all that go with them. Dave its a scary thing I am not gonna lie, all you can do is hold your child while those dang things happen I remember all too well the emotions and worry. Keep up on the Docs, have you tried the or looked into the KETO diet? I am trying to recall if that was the name. I pray and wish you both the best of luck with your childs seizure and that they also can be maintained and if possible grow out of them, if you need an ear to yak with dont hesitate shoot me a message.