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02-24-2009, 03:44 PM | #1 | |||
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Senior Member
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Sorry you're having these problems. It is frustrating. you sound like you really know what's going on with you and yes you just haven't come across the right path to healing, and asking is the right thing to do. It always helped me when I figured something out. Understanding is major positive. You can do something about it then. It could take a mirad of things, or a cocktail nowadays. ... without alcohol just a mixture of positive things that help you. Just because your MRI don't shake the doctor's chart doesn't mean it can't be debilitating to you. Sounds like a lot of instability, which would have an underlying cause. "Narrowing" can cause it too. So don't sell you findings short of being a pain producer. I had instability of my spine after MVA in 2000 until I had my cervical epidurals X 3 for me, in Feb and March 2006. Loooooonnnnngg wobblie struggle. my entire spine.... especially after traveling, driving or riding. I would set in my driveway and I swear my muscle spasms would vibrate and radiate like a... don't know how to describe that rippling effect of radiating muscle spasms after a trip. After my third epidural I got relief... and I slept and slept and slept... the month of April away. Dr. Atasoy, in June 06, figured out it was the Zanaflex making me drowsy after the epidurals had gave me relief. I could not get comfortable enough since 2000 to get a good 2 hour's sleep until I had the epidurals. know what I mean, Vern? So since Dec of 2001 I had been prescribed Zanaflex... well actually the 1st pain management doc demanded I get it filled, in Nov 2001... Zanaflex 4mg X3a day. Couldn't do the third. Made rubber bands out of my knees. Dangerous trying to walk I did make it up to Yoga and that helped... I hurt and struggled at first, but I took pain pills and patches anyway, and I was doing it for the rest of my body. Still in PT, still trying anything that came my way. I will say now it was worth it and I look forward to and will have to endure more to get stronger. so look around and see if you can pick up on things that are within your reach to start with. Maybe together we all can put Humpty Dumpty back together again so, the point being was, after the much needed epidurals X3 gave some relief -- even in my lower back too -- (have lower back bulges X4) -- I was in a bad shape physically from all that hard suffering and not very much sleep for years. I wasn't cured. Just relief. A major leap for me. Dr. Atasoy prescribed Bacloflen for daytime and... oh something else...forgot-it was generic all the time - for night time 1 and 1/2. It was functional but not strong enough. Lidoderm X 90 a month. I used two on my back on some days, or back and hip. Darvon 65, which helped. Dr. Atasoy would not prescribe me Neurontin. He said it was "Rotten Neurontin" My neurologist won't prescribe it either. Pain management gave me Neurontin and offered me everything. Stayed with PT, the good and bad that I had to have, apparently. Tried many things.... but you have to find a good provider to work with you, to guide and adjust that path for you. May take more than one provider. Hope you find relief. See you around the forum |
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02-24-2009, 05:49 PM | #2 | ||
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Junior Member
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Wow!
"I had instability of my spine after MVA in 2000" -sorry for asking a lame question but what is "MVA"? "Dr. Atasoy, in June 06, figured out it was the Zanaflex making me drowsy after the epidurals had gave me relief. I could not get comfortable enough since 2000 to get a good 2 hour's sleep until I had the epidurals. know what I mean, Vern?" I'm glad you are finally getting sleep! "so, the point being was, after the much needed epidurals X3 gave some relief -- even in my lower back too -- (have lower back bulges X4) -- I was in a bad shape physically from all that hard suffering and not very much sleep for years. I wasn't cured. Just relief. A major leap for me." Glad to hear it! "Stayed with PT, the good and bad that I had to have, apparently. Tried many things.... but you have to find a good provider to work with you, to guide and adjust that path for you. May take more than one provider." It's definitely looking like more than one provider at this point. I am in the middle of finding a new primary care physician(loooooong story) Thanks so much for writing and sharing your story. I really appreciate it. This has been such an isolating thing that it's good to some people to connect with ...even if it's virtual I hope you have a good night- Mae |
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"Thanks for this!" says: | (Broken Wings) (02-24-2009) |
02-24-2009, 09:28 PM | #3 | |||
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Senior Member
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Quote:
MVA = motor vehicle accident -- |
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02-25-2009, 07:20 AM | #4 | ||
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Junior Member
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Thanks for the clarification on MVA. Sorry to hear about that. I'm glad that you lived through it and are finding some relief.
Have a good day- Mae |
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02-25-2009, 08:34 AM | #5 | |||
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Wisest Elder Ever
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I think you should try Lidoderm patches. (a doctor has to order them)
These are pain patches that work locally to numb nerves that are firing too much. I think it is puzzling to have pain only when you move to stand. And then no pain when standing? Same with lying down. Back issues would hurt all the time standing. I'd apply one patch over the sacral area daily and see if after a couple or 3 weeks you see improvement. We have another poster on PN who was on Coumadin for a clot and after ending the drug developed hip pain (his clot was in the leg). His ID is Ivpound. If you come to PN you can search him. He also has no pain lying down. They cannot find a cause for him either.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Last edited by mrsD; 02-25-2009 at 08:56 AM. |
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"Thanks for this!" says: | (Broken Wings) (02-28-2009) |
02-25-2009, 08:45 AM | #6 | |||
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Senior Member
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The Lidoderm Patches worked for me. I guess I kept them on my back so long it has numbed it pretty good. numb is good.
I hear they have Flector Patches now. a nonnarcotic pain reliever with an anti-inflammatory if your doc thinks you need an anti-inflammatory. It's not the typical back pain I'm familier with, on and off with positioning. That could be a good thing on down the road. Hard for you and providers to deal with when you don't understand and it's not in the book. I believe you. |
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02-25-2009, 09:29 AM | #7 | ||
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Junior Member
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I will remember the suggestion for the patches when I go to the doctor. At this point I'm on hold for everything. I have an appointment with a spine specialist on March 19th and the neurologist told my primary that I should wait to go to the pain clinic until after that appointment.
The only pain I get in my back from standing is fatigue after a long time in one place. I will look up that posters name who was on Coumidin. While I was on the drug I had this theory that maybe it was responsible for my problems. I've only been off of it for about a week. I still have the hope in the back of my mind that my pain will just spontaneously disappear one day. My theory was based on the fact that Coumidin lists joint,back, and muscle pain as rare side effects.... and that vitamin K (which coumidin suppresses) is partly responsible for bone and muscle health. The whole situation is mind boggling. I appreciate the belief! I've been feeling like I need to film my every day life like a lame reality show to share with doctors. Maybe if they could see me struggling to walk from my car or from my desk to answer the door they would understand why I can't just accept their "backs are tricky" statements. The people who do see me always look like they are trying to decide whether to call 911 or not LOL It's laugh or cry really. Thanks again - Mae |
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"Thanks for this!" says: | (Broken Wings) (02-28-2009) |
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