Hello all.
I was told of this site by Jim Broach, of the RSDSA.
I've had RSD, and TOS for 26 years. (Geez, now that I think of it, it's about half my life). Hmmm.
Caused by a T-bone accident by a tractor trailer into my driver's door of my pickup.
Later, in 98, a nice (lost) lady blew a stop sign, I tried to brace, and would have been better letting the seat belt do the work. My head struck the top of the windshield (convertible), and I sprung a subdural hematoma, (TBI), and herniated some discs, in my neck, and low back. Life has been real fun.

Deja vu' all over again.
I'm (was) self employed with two business's. I was at work during both accidents. I was wealthy (well off).
First wife, left after the first accident (couldn't live with someone with rsd), left me with my two children to raise, which I happily did.
Second accident, second wife, did the same thing, except, that she was living in my home. She threw me and my children out, emptied my bank acct's and stole what money the business's were bringing in.
(That started in 98, I'm just now getting divorced). She thinks that I won't remember everything she did and stole. But, I have lots of pictures, and made lots of notes, my Macintosh computer(s) have been trusty friends, and I found some software that let me keep track of most everything.
Which, now I'm pulling that all together for my attorney.

My children stopped speaking to me, since I suppose they think I'm "giving it all away".(The TBI was an issue too), I have healed somewhat in that area. An attorney stole a beautiful property from me (them). And, I have an action against him. My life is doctors (I have a superb Neurologist), and lawyers, and pain, and sleep issues. Of course, God has a reason for me to be here, or, he simply doesn't want me yet! So, everyday, that I am able, I do something to advance my life, or help someone else if I can.

Methadone first line of defense for almost 20 years, with other adjuncts, for my brain, altzheimer's meds. CPap and O2 for sleep.

I suppose I'm very lucky. Because even though I am depressed, I can see rebuilding my life to a certain extent. My children are in their mid twenties now, and were being groomed to "take over" the family business.(A decade and more ago). That of course didn't happen, but, may still one day. And, I hear I'm a grandfather too. I hope to meet my granddaughter soon.

Since I'm kind of an old dog at this, while I'm sure I'll have questions, please, don't be shy about asking me anything.

Over the years, I've recognized RSD in at least a dozen people, and sent them to get it checked out, and sure enough. (I worked with the public alot).

I have some close friends who have RSD and MS as well.

I'm pleased to find your little village here, and hope to get to know ya'll!

Pete
ASB

Hello ASB
Nice to meet ya.
Holler if you need any help navigating around the site.

Hi ASB


Here is the direct link to the RSD forum. http://neurotalk.psychcentral.com/forum21.html

Thank you Jo*mar and Curious, for the very kind welcome!

Your site, members and kindness all seem vast!

Nice to be here!

ASB

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene

hi asb seen ya posting down on the tbi board

thanks for your input and welcome

welcome to neurotalk ... there are lots of friendly and supportive people here so jump right in and start posting ... should you need help, don't hesitate to ask someone ... we are here to help ... hope to see you in some of the forums ... again

Aloha,

I decided to join this community because after browsing a bit, enjoyed the different forums and info shared. I have RSD (2yrs) and always looking for new info.

Aikane means FRIEND in Hawaiian.

????? How do I join a group, and where is the icon "join"????

Little about me: Had a DVT (blood clot) from business travel that went undiagnosed for few months and now have nerve damage, valve damage and RSD. Had numerous problems with WC doc who didn't know what to do worsening symptoms and wouldn't give me a dx bec actual clot was not seen on ultrasound. (Clots can be small and undetected on U/S, doesn't mean you don't have one). I am 42, mother of 5 (23, 22, 20, 17 and 9) I now only have the 2 youngest at home. My youngest is deaf. More about me, c me on RSD forum.

Mahalo!!

Hello, New Friend!

I'm ASB Pete
or, call me what you will.

Thanks for joining!
You'll meet lots of helpful, inspirational folks here. I wish I could answer all your questions, but, by now I imagine that you've managed to join.
At the top of ANY page, click on neurotalk communities.
It will take you back to the "home page" or the beginning.
Spread out from there.

I don't know a lot about clots, I've never had any. I suppose you must have your blood tested and monitored?
The RSD, I'm very familiar with. Mine started in 83, and was upper left torso/extremity only.
It quickly went to the right side.
Then, in a few more years went what is sometimes (but I think wrongfully) called "full body".
It's not really full body, I certainly have places that don't have the pain as badly, but the perspiration, yes. So, some doctors I've seen have frowned when I said "full body". They didn't get it.
You know your own body.
Trust what it tells you. It must speak through you to your doctor(s).
Which, btw, do you have a good doctor for your RSD?
And, how is your treatment going?

Let us know!

Pete
ASB