I have just learned that I have 'reflex sympathetic dystropy" .
got injured exersizing ,spent a week in the hospital and 3 weeks recovering at home .Today I learn I have RSD or CRPS in my leg .They say no cure .Is there a survivor out there ? Someone who recoverd ? send hope please .

Awww rmclanahan, I'm sorry you have the need for us, but so glad you found us.

We have a wonderful RSD forum..here is the direct link if you haven't found it yet.

http://neurotalk.psychcentral.com/forum21.html

Let me know if you need any help around the forum.

Hello New with RSD,

There are treatments that help and when it is diagnoised early, sometimes it can be put into what is referred to as a hold. Go to the RSDS.org website and you can get a lot of information that will help. Talking with people on this web site will be a huge help. Western Medicine knows a lot but when it comes to the nervous system they have a lot more to learn. No two people have the same nervous system and this conditon affects each one of us differently. While there is no cure there are treatments that offer relief. I see a Chiropractor 3 times a week he was the first doctor to say I have RSD. I have had it for 8 years. Find a pain management doctor and a pain management phycologist. I go to the YMCA and water walk and take an arthritis class. Since we are weightless in the water it doesn't hurt to do these things. For all that Western Medicine is able to do this conditon is so complex that some doctors don't understand the conditon and they are intimidated by what they don't know. After all they are in the business of helping people and this condition can make them feel helpless. Take charge of your health care ask questions. Right now you are in shock you have been told you have a condition that there is no cure for. You made the right decision to come to this web site for support. Go to the RSDS web site so you can get informed. Take control of your health don't let it control you be an active participant in your health care. If you don't have a personal relationship with God now is the perfect time to start one. He offers a peace that passes all understanding.

While I have not heard of any total cure, there are numerous treatments that seem to help. Everyone is different, but there is hope. I have had good luck with a creme that my pain doctor prescribed. It is a very good thing that you were diagnosed early on. Physical therapy might be an avenue. Find a very good Doctor who is familiar with RSD and has had sucess with his treatments. Not everything works for everyone. My tip is to find a doctor who is more interested in treating RSD than performing never ending tests. That is my view. I am not an expert, but have had this condition for over a year and a half. Take it one day at a time and think positive.

Hello SBOWLING and ajdal.

Have you followed the link to the RSD forum? Or checked out some of our social type? You are welcome anywhere and everwhere on NT. We post about a lot of stuff, from health concerns to recipes, movies..food and more food.

rmclanahan, SBOWLING and ajdal

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene

Hello mcclanahan and ajdal, and welcome to NeuroTalk! This is such a great place to hang out with many helpful and friendly people.

I see you've been pointed to the RSD forum.

I'm posting a link to the Fun and Games just in case you need something to take your minds off your problems for awhile.

http://neurotalk.psychcentral.com/forum104.html

I began a intensive research of RSD and grew more and more disturbed with each bit of new information .My wife who is "only positive " discourages me from study fearing I will learn more bad news .
I found a physical theripist who is now treating me .The treatments are uh ,building "character" if nothing else .Now I think I know what burn pts have to endure .( although they are now sedated during wound care )
I noted you have endured the affliction for 8 years ,the suffering you have no doubt been through has to have made you an extraordiary person .Im pleased to meet you . My attitude has improved to positive .Thanks for your thoughts

Hello Rmclanahan and Welcome to Neurotalk - it is great to meet you although im sorry you have to be here!!! Everyone here is so nice and friendly so i'm sure they will try and help you and answer any questions you may have!!!!

I'm so sorry to hear that you suffer from RSD also and really hope that things get better for you real soon!! I have RSD in my left leg and both arms - I developed it when I was 12 years old after an ankle sprain and am now 14.

As your doctors said, unfortunately there is no cure for RSD HOWEVER it CAN be managed with medications and different therapies such as PT, HBOT etc. I have tried all sorts of things to try and make it better and none have worked so far although I always try and remain positive if at all possible!!!! Please dont ever give up hope - there is always research and different medications coming available onto the market!!

If you need anything, please dont hesitate to ask - I am more than happy to help you if I can because I DO understand how scary and upsetting it can be to find out that you have been diagnosed with such a scary condition!!!

Take care of yourself and I hope to see you around the forum more real soon!

Alison