Hello, I have had RSD for about ten years now. I have had about 20 nerve blocks and numerous surgeries. I am currently dealing with the pain. Most of you know that is a day to day situation. My oldest daughter had RSD when she was nine and we thought she would never walk again. She has fully recovered and has been in remission for fourteen years. I am looking for a support group to help me on bad days and a place to feel like I am able to use something I have gained from all of this to help others. Someday we will win.

Well hello and welcome castes4me44.

I am so sorry to hear of yoru RSD, but how wonderful that your daughter is in remission.

You'll find lots of support all over NeuroTalk. Feel free to post anywhere that sparks an interest. We have many Social type of forums.

Here is a direct link to our RSD forum. http://neurotalk.psychcentral.com/forum21.html

I found a little castle for you.

Thanks so much for the little castle and the kind words!

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene

Hello Castles, and welcome to NeuroTalk! You will find many good forums here, and there are lots and lots of friendly and helpful people. That is very good news about your daughter.

welcome to neurotalk ... there are lots of friendly and supportive people here so jump right in and start posting ... should you need help, don't hesitate to ask someone ... we are here to help ... hope to see you in some of the forums ... again

Hi and welcome to NeuroTalk! Join in wherever you feel comfortable. We're very glad to have you here!

She has gone on to attend a university. Yes I am very happy for her.
I hope to find someone to talk to here. It gets very lonely staying home alone a lot of the time. Thanks for your kind words.

Iam a new member as well as a new "victim" ? ( that term disturbs me )
My physical therepist demanded that I present him with three positive things yesterday before I was allowed in the treatment room .The first one I offerd was that my children were not afflicted with this disorder.I endure the pain of therapy by reminding myself that I would do "anything " to endure this agony for my children
I can share your elation of your daughters recovery and am ashamed that I am here looking for consolation while others have displayed courage with this torture for a decade .
My PT says he has seen people recover and says that my odds of complete recovery are high . I hope the same becomes true for all others on this forum

It is so scary at first when you hear from your doctor your diagnosis. It is very overwhelming. I knew what was involved already when I got mine. We had only had my daughter in remission for about two years when I developed RSD. It was like I wanted to stand at the top of the Grand Canyon and scream "Why?!". You shouldn't feel ashamed, you are at the very beginning. You will feel these feeling again, and don't be ashamed then either. I am so glad they have found it early and you have a great chance for recovery. It will make you a stronger person. You will be a better Mom and your children will be more appreciative of the small things in life. It does put life in perspective. Let your family help you too. You are always there for them. That is a hard thing to do, but you will recover quicker. Good Luck!