[tjbird]

I want to thank you all for your generous welcomes. I broke my leg in June 2006, was diagnosed with RSD/CRPS on June 19, 2007. Now I have all kinds of issues, the latest (not confirmed by my pain centr yet) my primary DR said more than likely fibermialgia since I have the RSD and my medical history. I thought I had RSD of the bones but after reading some of the symptoms I absolutly could not believe how much matched. One of the main reasons I am here is because my husband does not want to learn anything about what is wrong with me, I only have one friend who is sicker than me, I live in the mountains of VA where a shrink told me when I needed help with the depression "RSD, I've heard that it is a real bear". Needless to say I am in mental deficit I have been hunting for guidence in answering my main question and maybe you all can help; What comes after "Life as I knew it is Over!" I am miserable, I try living one day at a time but that comes up with another day of pain.
Looking forward to hearing from you!
tjbird

[Chemar]

Hi tjbird

I moved your post off that older thread as it was lost there...this way members can see and welcome you

here is the link to our RSD forum where you will find much info and support
http://neurotalk.psychcentral.com/forum21.html

all the best to you

[Alffe]

Hi Bird and welcome to Neuro Talk...I see that Chemar has given you the link to our RSD forum. I'm glad you've joined us.

[Kitty]

Hi tjbird...welcome to NeuroTalk! So happy you've joined us!

[azoyizes]

Hi tjbird, and welcome to NeuroTalk!

This is a great place to hang out with a lot of interesting forums, and bunches of nice and caring people.

[ali12]

Hello TjBird and Welcome to Neurotalk!!! It is great to meet you and you will find many great people here who I am sure will be more than happy to help you in anyway they possibly can!!!

I'm so sorry to hear that you also suffer from RSD and I really hope that things start getting better for you real soon!!!! I have RSD in both arms and my left leg - I developed it when I was 12 years old after I fell and sprained my ankle and am now 14. I have tried all sorts of medications and treatments and none have really helped so far.

If you need anything, please dont hesitate to ask - I am more than happy to help you if I can as I KNOW how scary it can be dealing with such an awful condition!!

Take care and I hope to see you around the forum more real soon!!!

Alison

[AintSoBad]

Originally Posted by tjbird

I want to thank you all for your generous welcomes. I broke my leg in June 2006, was diagnosed with RSD/CRPS on June 19, 2007. Now I have all kinds of issues, the latest (not confirmed by my pain centr yet) my primary DR said more than likely fibermialgia since I have the RSD and my medical history. I thought I had RSD of the bones but after reading some of the symptoms I absolutly could not believe how much matched. One of the main reasons I am here is because my husband does not want to learn anything about what is wrong with me, I only have one friend who is sicker than me, I live in the mountains of VA where a shrink told me when I needed help with the depression "RSD, I've heard that it is a real bear". Needless to say I am in mental deficit I have been hunting for guidence in answering my main question and maybe you all can help; What comes after "Life as I knew it is Over!" I am miserable, I try living one day at a time but that comes up with another day of pain.
Looking forward to hearing from you!
tjbird

It's a pleasure to meet you tjbird,
I'm Pete/ASB

I've had RSD/TOS since 83, and then another accident gave me a head injury in 98.
My story is posted elsewhere.

You certainly present yourself well, and, I cannot lie, you do have a "tough row to hoe".
That's what Dr S. told me on my initial diagnoses.
Yes, rsd can make your bones feel like they're on fire, and your skin cold. ice cold.
Or, the opposite. Rsd has it's own mind. That, you'll need to get used to.

I feel terribly for you, about your husband. I have had two wives like that, the first, decided she didn't want to be married to someone on "drugs". (She left me with my two young children, and proceeded to "party the town".) Second wife, knew of the rsd, but then, the second acccident. She is still in the process of devouring my and my two children's lives. (She's got me, taking from my disability income, threw us out of MY house, and is now trying to take that.) She stole all my bank acc'ts with forgery, and I'm catch 22, can't afford a lawyer. THANK GOD, I finally found one who will work with me! In Philly we have a legal clinic for the disabled, and they found me one who I will meet tomorrow. I'm praying.

It still annoys me about your husband, whatever happened to "In sickness and in health?" Both my father in laws asked me that, about their own daughters.
(You know what, even though my children don't speak to me at the moment, I know that they're going to have strong relationships, they do already, they've learned so much from what I've been able to teach them, and what they've witnessed). They'll be back as soon as "she" is gone.

As for your husband, he may be Afraid, intimidated, or some such emotion, but give him a chance. Invite him to the doctor with you. All of them. If he doesn't come around, I hate to say, the writing may be on the wall.
I don't know what causes people to be like this. I couldn't do it that way.

But, for your main question, "What comes after "Life as I knew it is Over!"
I'll tell you what happened to me.
First off, only a small part of your old life is over. No need for a ceremony.

You should embrace your new life. The more, and sooner you do, the better your "new life" will be.
Fight it, and it will fight back!
Accept it, and have trust and faith in your higher power. For me, it's God and Christ.
"His will be done". gets me through every day.
I ask, I pray, what is it, God, that I'm supposed to be learning today? Help me!
He does.
There are setbacks, often. Roll with them, find a "comfort zone" for yourself!
A place where you can take the pain, and get comfortable enough to pass the time, until the worst passes.

Remember too, there are three points to dealing with RSD.

Your meds. (your doctors).

Yours emotions. (Your psych doctor, and faith).

Your body (Exercise, and beat the cycle of pain and depression).
Take care of yourself, your mind, and your disease.
Keep your faith.

Keep your friends, and you'll find that you will lose some, and gain some.
(But, You cannot lose what you never had)!

You have lots of new friends here, Don't EVER hesitate to contact Me, ( A PM is fine ), or any of us.
I'm new here myself, and have made some good friends already.

You will do well, because you have reached out, and are not balled up doing nothing.
So, you are an action person, and this will NOT beat you!

All the best to you, and, I apologize for sometimes being too straight with my speak. It's my head injury, that sometimes does that.

I truly empathize with your situation.

Peace and love

Pete
ASB

[SBOWLING]

Originally Posted by tjbird

I want to thank you all for your generous welcomes. I broke my leg in June 2006, was diagnosed with RSD/CRPS on June 19, 2007. Now I have all kinds of issues, the latest (not confirmed by my pain centr yet) my primary DR said more than likely fibermialgia since I have the RSD and my medical history. I thought I had RSD of the bones but after reading some of the symptoms I absolutly could not believe how much matched. One of the main reasons I am here is because my husband does not want to learn anything about what is wrong with me, I only have one friend who is sicker than me, I live in the mountains of VA where a shrink told me when I needed help with the depression "RSD, I've heard that it is a real bear". Needless to say I am in mental deficit I have been hunting for guidence in answering my main question and maybe you all can help; What comes after "Life as I knew it is Over!" I am miserable, I try living one day at a time but that comes up with another day of pain.
Looking forward to hearing from you!
tjbird

Hello and welcome to the site. There are a lot of good people here who have a lot of good advice and knowledge. Aintsobad has some very good tips about the doctors, mental health, exercise and friends. It is a difficult task getting your medical team together but one you won't regret. Your mental health is important my pain management phsycologist has been wonderful. He helps me to sort out medical treatments and legal matters. Exercise is a must I water walk at the YMCA. The most important part of my treatment plan is my God. I ask him every morning for the strenght and energy to face the days challenges and I pray every night for his peace that passes all understanding so I can sleep. I have full body RSD from the top of my head to the tip of my toes and it effects my lungs and heart. God has never failed me his grace is amazing. Once I let God have control everything started to fall into place.

Ask your husband to help you by taking the time to listen. You are in the for worse part of For better or worse. You didn't ask for this health condition but you need him to understand what is happening to your body. As your health causes changes in your life it also causes changes in your relationships. My pain management physcologist told me there are 3 types of husbands:
The ones that leave
The ones that stay and act as if nothing is wrong
The ones that stay and help in anyway they can.
I hope your husband can be turned around to be number 3. Your health has put a huge stress on your relationship listen to each other. He sees you hurting and wants to help but feels helpless. I wish you the best I went through this with my husband he turned out to be the one that stayed and helps.
May God bless you,
Sbowling

[(Broken Wings)]

You have a very passive way of expressing and helping through what you write. Thanks for your point of view.

Originally Posted by AintSoBad

It's a pleasure to meet you tjbird,
I'm Pete/ASB

I've had RSD/TOS since 83, and then another accident gave me a head injury in 98.
My story is posted elsewhere.

You certainly present yourself well, and, I cannot lie, you do have a "tough row to hoe".
That's what Dr S. told me on my initial diagnoses.
Yes, rsd can make your bones feel like they're on fire, and your skin cold. ice cold.
Or, the opposite. Rsd has it's own mind. That, you'll need to get used to.

I feel terribly for you, about your husband. I have had two wives like that, the first, decided she didn't want to be married to someone on "drugs". (She left me with my two young children, and proceeded to "party the town".) Second wife, knew of the rsd, but then, the second acccident. She is still in the process of devouring my and my two children's lives. (She's got me, taking from my disability income, threw us out of MY house, and is now trying to take that.) She stole all my bank acc'ts with forgery, and I'm catch 22, can't afford a lawyer. THANK GOD, I finally found one who will work with me! In Philly we have a legal clinic for the disabled, and they found me one who I will meet tomorrow. I'm praying.

It still annoys me about your husband, whatever happened to "In sickness and in health?" Both my father in laws asked me that, about their own daughters.
(You know what, even though my children don't speak to me at the moment, I know that they're going to have strong relationships, they do already, they've learned so much from what I've been able to teach them, and what they've witnessed). They'll be back as soon as "she" is gone.

As for your husband, he may be Afraid, intimidated, or some such emotion, but give him a chance. Invite him to the doctor with you. All of them. If he doesn't come around, I hate to say, the writing may be on the wall.
I don't know what causes people to be like this. I couldn't do it that way.

But, for your main question, "What comes after "Life as I knew it is Over!"
I'll tell you what happened to me.
First off, only a small part of your old life is over. No need for a ceremony.

You should embrace your new life. The more, and sooner you do, the better your "new life" will be.
Fight it, and it will fight back!
Accept it, and have trust and faith in your higher power. For me, it's God and Christ.
"His will be done". gets me through every day.
I ask, I pray, what is it, God, that I'm supposed to be learning today? Help me!
He does.
There are setbacks, often. Roll with them, find a "comfort zone" for yourself!
A place where you can take the pain, and get comfortable enough to pass the time, until the worst passes.

Remember too, there are three points to dealing with RSD.

Your meds. (your doctors).

Yours emotions. (Your psych doctor, and faith).

Your body (Exercise, and beat the cycle of pain and depression).
Take care of yourself, your mind, and your disease.
Keep your faith.

Keep your friends, and you'll find that you will lose some, and gain some.
(But, You cannot lose what you never had)!

You have lots of new friends here, Don't EVER hesitate to contact Me, ( A PM is fine ), or any of us.
I'm new here myself, and have made some good friends already.

You will do well, because you have reached out, and are not balled up doing nothing.
So, you are an action person, and this will NOT beat you!

All the best to you, and, I apologize for sometimes being too straight with my speak. It's my head injury, that sometimes does that.

I truly empathize with your situation.

Peace and love

Pete
ASB