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Old 04-04-2009, 08:06 PM #1
babsinpain babsinpain is offline
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Unhappy New member w/CRPS

I was recently diagnosed with CRPS for the second time. i had it 18 months ago following a foot injury and it was successfully treated with 3 sympathetic blocks and neurontin. I fractured my tibia and now have it again. i have had 4 blocks and 2400 mg of neurontin but it has spread back to my other leg as well as the injured leg. Does anyone have any suggestions. I feel guilty being discouraged already - it has only been a few months. i am not sure I can deal with the pain again. the fracture was nothing compared to the CRPS.
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Old 04-05-2009, 12:48 AM #2
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Welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible. Check out the founding form, there are a number of people there who be of assistance to you.

http://neurotalk.psychcentral.com/forum21.html

Again welcome, looking forward to seeing you around.

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Old 04-05-2009, 04:12 AM #3
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Sorry you're having pain. It's a bummer.

There's a lot of good people here that will share their experiences with you, give you support and offer their advice. I hope you can find some relief soon.
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Old 04-05-2009, 09:20 AM #4
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Hi there,

Welcome to the group; you will find that you have entered a zone of support and understanding.

I am sorry that you are in so much pain.

Dew
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 04-05-2009, 11:21 AM #5
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Hi babs, and welcome to NeuroTalk!

This is such a great place with many forums and lots of topics. You will also find a whole bunch of friendly and caring people here.
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Old 04-07-2009, 08:17 PM #6
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Hi Babs and welcome to NeuroTalk. Glad you found us, so please take a look around and make yourself at home.
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Old 04-07-2009, 10:30 PM #7
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Quote:
Originally Posted by babsinpain View Post
I was recently diagnosed with CRPS for the second time. i had it 18 months ago following a foot injury and it was successfully treated with 3 sympathetic blocks and neurontin. I fractured my tibia and now have it again. i have had 4 blocks and 2400 mg of neurontin but it has spread back to my other leg as well as the injured leg. Does anyone have any suggestions. I feel guilty being discouraged already - it has only been a few months. i am not sure I can deal with the pain again. the fracture was nothing compared to the CRPS.
Hello babsinpain,

Welcome, to the group. You will find a lot of caring people here.
I think it's normal to be discouraged. Remeber you were successfully treated before and it can happen again.
Take care,
Sherrie:grouphug
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Old 04-08-2009, 02:51 AM #8
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Hi Babs,
I'm new as well and this is a great place to find encouragement. I get stuck in self-pity a lot and visiting this site has helped remind me that I'm really not that bad off; there are a lot of people in worse condition then me.
If u dealt with the pain b4, then u can do it again... I'm sure that ur doc can find just the right treatment 4 u.
I wish u well
Sarah
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Old 04-08-2009, 08:46 PM #9
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Confused new member with RSD

I had an injury 3 1/2 years ago but now I found doctors to start treatment. Previous doctors didn't believe it was RSD so now it progressed. I just want my life back. I hate Washington state since people here are unfriendly, etc.
I am also staying in a relationship that I am unhappy in until I get better. No family and worked most of the time before so no friends. Was changing careers before this happened. Would like to know what works. It is in my left dominant hand and arm and just started to affect right hand.
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Old 04-08-2009, 09:13 PM #10
AintSoBad AintSoBad is offline
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Quote:
Originally Posted by babsinpain View Post
I was recently diagnosed with CRPS for the second time. i had it 18 months ago following a foot injury and it was successfully treated with 3 sympathetic blocks and neurontin. I fractured my tibia and now have it again. i have had 4 blocks and 2400 mg of neurontin but it has spread back to my other leg as well as the injured leg. Does anyone have any suggestions. I feel guilty being discouraged already - it has only been a few months. i am not sure I can deal with the pain again. the fracture was nothing compared to the CRPS.
Babsinpain,
18 mos. ago, you say you were "successfully treated".
What's that mean? Exactly? You were "cured", then, it happened again?
How soon, how long were you cured for? (Two questions).

This is a very complicated issue, and, I simply cannot get into the "Welcome aboard" type posts.
If I am to be of help.
I need to know some facts.
Please, give them?
(Yes, You ARE at the right place, but, we need facts)!

How long after you were "Altogether cured", did the second incident, and onset (again two questions), happen? I'm not "drilling" you, but you'd better be prepared to answer this to your doctor!

I'd bet, that you Never were "cured" the first time.
The second injury just brought it to the fore, again.

If that can make sense for you.

Please, believe me,
I know what a second injury can do.
Nobody can choose their "victim"...

And, that's why us with rsd, must be so careful.

Please, give us more details?

I'd love to help!

PM me, if you wish.....

Pete
ASB
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