[babie_racer_in]

hello
I found this community while ironically doing reseach not for my or anyone I know's information. My son and husband have epilepsy and I had heard of Darvet syndrome and didnt know what it was so I was looking it up. My son does not have Darvet syndrome and his sesiures up until a couple weeks ago were well controlled. His sesiures are caused by TSC along with developmental delay and other problems. His neurological involvment is getting worse so I have been lookin at any information or people I can talk to about it. I belong to The TSC alliance. I have dyspraxia and major recurant depression. My husband also have TSC but very mildly. I hope to get to talk to many of you and help someone. I want to give back not just take.