[babie_racer_in]

hello
I found this community while ironically doing reseach not for my or anyone I know's information. My son and husband have epilepsy and I had heard of Darvet syndrome and didnt know what it was so I was looking it up. My son does not have Darvet syndrome and his sesiures up until a couple weeks ago were well controlled. His sesiures are caused by TSC along with developmental delay and other problems. His neurological involvment is getting worse so I have been lookin at any information or people I can talk to about it. I belong to The TSC alliance. I have dyspraxia and major recurant depression. My husband also have TSC but very mildly. I hope to get to talk to many of you and help someone. I want to give back not just take.

[(Broken Wings)]

And we need you as much as you need us.

I'm sorry you and your family have so many problems to deal with. I know it must seem unfair. I don't about Darvet Syndrome, myself. I don't if we have a forum for that one. I'm kind o new too. Someone may come along and direct you to the right place.

Hang in there. We're here for you.

Originally Posted by babie_racer_in

hello
I found this community while ironically doing reseach not for my or anyone I know's information. My son and husband have epilepsy and I had heard of Darvet syndrome and didnt know what it was so I was looking it up. My son does not have Darvet syndrome and his sesiures up until a couple weeks ago were well controlled. His sesiures are caused by TSC along with developmental delay and other problems. His neurological involvment is getting worse so I have been lookin at any information or people I can talk to about it. I belong to The TSC alliance. I have dyspraxia and major recurant depression. My husband also have TSC but very mildly. I hope to get to talk to many of you and help someone. I want to give back not just take.

[Kitty]

Hello and welcome to NeuroTalk! I've posted the link to the Epilepsy forum for you in case you haven't visited there yet. Please feel free to look around and join in anywhere you feel comfortable. Glad you decided to join us here!


http://neurotalk.psychcentral.com/forum11.html

[azoyizes]

Hello, and a warm welcome to NeuroTalk!

Here, you will find many caring and helpful people. It's a nice place to be, and I'm glad you found us.

[MooseasaurusRex]

babie!

babiebabiebabie!

I'm sorry to hear the situations with your family. But glad you found us. My grand father had epilepsy and they found I had a mild form of it when I was getting tested for MS. But this isn't about me.

As far as research goes, we got tons of information to share on a long list of topics. If you can't find a subject, just start a thread on it!

Our team here has a single minded priority and purpose, take care of each other. So remember;

You are not alone.
You are one of us.
And we are here to help.

I am the MonSter that MS fears.

[Darlene]

Welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

I myself have epilepsy since childhood. The epilepsy forum, which Kitty gave you, is a very helpful one. You will find a great number of friends there for you.

Again welcome, looking forward to seeing you around.

Darlene