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Old 04-29-2009, 04:34 PM #1
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Hi, I see you've found the other forums and are off to a good start, but I just wanted to welcome you to the community. You'll find lots of support here, not just on the "medical" forums but the fun ones also, if you just want to chat with someone. There is almost always somebody home here!
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(Broken Wings) (04-29-2009), tamiloo (04-30-2009)
Old 04-29-2009, 05:26 PM #2
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Hi, and WELCOME


So sorry you're stricken with that. I don't know about that, personally. There will be many others on the NeuroTalk communities that will embrace you and exchange their stories.

Hang is there.
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Old 04-30-2009, 05:28 AM #3
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Reese, I first wanted to say welcome to Neuro Talk…I noticed you found the Arnold Chiari Malformation and Syringomyelia Forum. I went to Medline Plus to learn a little more about this condition. It must be hard to come to terms with what this might do to your children. I talked to my daughter who is 23 about what is going one with you and she said to tell her that her kids will be ok.

I wanted to just in short tell you I was born with Spina Bifida Occulta. I had three back surgeries in a two year period of time when my son and daughter were 3 and 5 years old. They learned how to take care of me because my husband was what I called my fair weather friend…he was around as long as I wasn’t in pain. I had my fourth surgery when they were both in high school and the fifth one six months ago. My daughter said she learned so much back when she was younger about how to take care of herself when needed which has helped her all her life. They both grew through my pain.

One thing I did was to involve them in everything. This past surgery my daughter was scared that I would die during surgery…she was scared to death. I took her with me to my pre-surgery exam so she could ask the doctor any questions she wanted to. She actually knew the PA so that helped her to relax. After the visit she was ok. She hates hospitals but came to see me every day.

I know there are a lot of questions of the unknown variety going on in your head. Make a list and take it to your doc appointment. I also know how hard it must have been watching your Dad suffer with his MS, my husband, aka, the Olhipie was diagnosed over 23 years ago…you take care and know you and your little family are in my prayers…sorry about going on…

If you need a listening ear...I'm here...hope all goes well with you appointment...
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Old 04-30-2009, 09:36 AM #4
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Hi Reese, and welcome to NeuroTalk! This is such a great place with lots of very nice and caring people.

I don't know much about what you're going through. I'm here because of MS. But, please feel free to PM me if you ever feel like just talking to someone.
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Old 05-05-2009, 06:05 PM #5
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welcome to neurotalk ... there are lots of friendly and supportive people here so jump right in and start posting ... should you need help, don't hesitate to ask someone ... we are here to help
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