I'm new here too, and am glad that I found your site. I'm actually terribly exhausted today, so won't share much info. I'm also hoping that next time I want to come back here, I'll remember the sign-in name I used!

I don't have a diagnosis yet, but have several symptoms that are neuropathic. In the fall of 2007 I developed double vision. I've also been having muscle twitches for more than 3 months now...every day, all day. I get sharp 'electric' type pain sometimes down a limb. Sometimes my feet go numb, sometimes my hands tingle. I have had a rash on my face for about 10 years now. I was told it was rosacea though. I have some hair loss too. There's more, but I think that's the main stuff.

My mom has primary progressive multiple sclerosis. She is 56 years old and has lived in a nursing home for 10 years already. I have two aunts that were diagnosed with SLE (Lupus)...both on my dad's side of the family. One is struggling with lung problems mostly, and the younger aunt (58 years old) passed away due to Lupus in April 2009.

I don't know what I have, but it would be nice to find out. I'm hoping to learn from those on this forum...about their lives and the roads to (and beyond) their diagnosis.

Kind regards,

Jayne

Welcome

It's a great place to come to. We do understand.

You could have multiple health issues. So sorry you're having these issues. It always helped me to understand what was going on so I hope you get your answers soon.

Welcome

It's a great place to come to. We do understand.

You could have multiple health issues. So sorry you're having these issues. It always helped me to understand what was going on so I hope you get your answers soon.

Here are links to the MS and Lupus forum.

http://neurotalk.psychcentral.com/forum17.html

http://neurotalk.psychcentral.com/forum12.html

http://neurotalk.psychcentral.com/forum44.html

Welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene

Welcome Jayne!

Sorry for your health problems, but I agree that its best to know what you are dealing with. I hope you are able to find some answers soon.

Meanwhile, I hope to see you posting. Jump in anywhere!

Welcome to NeuroTalk, Jayne! I hope you can find out what you're suffering with so you can begin some sort of treatment. It's frustrating when you can't get a dx but unfortunately that's what alot of people go through.

Hope to see you posting again soon!

Hi Jayne, and welcome to NeruoTalk! This is such a nice place to come to with lots of friendly, helpful, and caring people.

We're so glad you found us!